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Iowa Orthop J. 2013;33:142-8.
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The impact of the Ponseti treatment method on parents and caregivers of children with clubfoot: a comparison of two urban populations in Europe and Africa.庞塞蒂治疗方法对马蹄内翻足患儿家长及照料者的影响:欧洲和非洲两个城市人口的比较
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Multivariate Behav Res. 1990 Apr 1;25(2):163-72. doi: 10.1207/s15327906mbr2502_3.
2
Online information exchanges for parents of children with a rare health condition: key findings from an online support community.针对患有罕见疾病儿童的家长的在线信息交流:来自一个在线支持社区的主要发现。
J Med Internet Res. 2013 Jan 22;15(1):e16. doi: 10.2196/jmir.2423.
3
Health-related Support Groups on the Internet: Linking Empirical Findings to Social Support and Computer-mediated Communication Theory.互联网上的健康相关支持小组:将实证研究结果与社会支持和计算机中介传播理论联系起来。
J Health Psychol. 2003 Jan;8(1):39-54. doi: 10.1177/1359105303008001429.
4
Creating a bond between caregivers online: effect on caregivers' coping strategies.建立在线护患关系:对护患应对策略的影响。
J Health Commun. 2012;17(2):125-40. doi: 10.1080/10810730.2011.585687. Epub 2011 Oct 17.
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Online solutions to support needs and preferences of parents of children with asthma and allergies.在线解决方案以满足哮喘和过敏儿童父母的需求和偏好。
J Fam Nurs. 2011 Aug;17(3):357-79. doi: 10.1177/1074840711415416.
6
Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better?基于互联网的癌症患者互动支持:综合系统是否更佳?
J Commun. 2008 Jun;58(2):238-257. doi: 10.1111/j.1460-2466.2008.00383.x.
7
Factors Associated with Use of Interactive Cancer Communication System: An Application of the Comprehensive Model of Information Seeking.与交互式癌症沟通系统使用相关的因素:信息寻求综合模型的应用
J Comput Mediat Commun. 2010 Apr;15(3):367-388. doi: 10.1111/j.1083-6101.2010.01508.x.
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'One wants to know what a chromosome is': the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder.“人们想知道染色体是什么”:在适应养育患有罕见遗传病孩子的生活时,互联网作为一种应对资源。
Sociol Health Illn. 2011 Jan;33(1):81-95. doi: 10.1111/j.1467-9566.2010.01277.x. Epub 2010 Oct 11.
9
Evolution of autism support and understanding via the World Wide Web.通过万维网实现的自闭症支持与理解的演变
Intellect Dev Disabil. 2010 Jun;48(3):220-7. doi: 10.1352/1934-9556-48.3.220.
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Potential for response bias in family surveys about end-of-life care in the ICU.关于重症监护病房临终关怀的家庭调查中存在回应偏差的可能性。
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在马蹄内翻足护理背景下管理不确定性:探索不确定性管理理论的价值及虚拟社区感

Managing uncertainty in the context of clubfoot care: exploring the value of uncertainty management theory and the sense of virtual community.

作者信息

Oprescu Florin, Campo Shelly, Lowe John, Andsager Julie, Morcuende Jose A

机构信息

University of the Sunshine Coast, Sippy Downs, QLD , Australia.

出版信息

Iowa Orthop J. 2013;33:142-8.

PMID:24027474
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3748870/
Abstract

Serious health conditions, such as clubfoot, could be a major source of uncertainty and stress for parents of children affected. How parents deal with uncertainty and stress as related to their child's health condition is of interest for medical professionals and health communicators alike. While physicians remain a preferred source of health information, during medical encounters or via phone and email communication, many individuals seek out health information on the Internet, including in online support communities. This study explored the connections between Uncertainty Management Theory (UMT) constructs and the potential contribution of the sense of virtual community (SOVC) to the UMT framework. The results of this research suggest that the UMT needs to be adapted for use in online contexts. One way is to include theoretical constructs, such as the sense of virtual community, specifically developed to measure online interactions. A modified and updated Uncertainty Management Theory could be useful in exploring, analyzing and understanding online behaviors related to health conditions such as clubfoot and thus contribute substantially to what we know about caregivers in their role as uncertainty managers.

摘要

严重的健康状况,如马蹄内翻足,可能是受影响儿童家长不确定性和压力的主要来源。家长如何应对与孩子健康状况相关的不确定性和压力,这对医学专业人员和健康传播者来说都很感兴趣。虽然医生仍然是健康信息的首选来源,无论是在医疗问诊期间还是通过电话和电子邮件交流,但许多人会在互联网上,包括在线支持社区中寻找健康信息。本研究探讨了不确定性管理理论(UMT)的构成要素与虚拟社区感(SOVC)对UMT框架的潜在贡献之间的联系。这项研究的结果表明,UMT需要进行调整以适用于在线环境。一种方法是纳入专门为衡量在线互动而开发的理论构成要素,如虚拟社区感。经过修改和更新的不确定性管理理论可能有助于探索、分析和理解与马蹄内翻足等健康状况相关的在线行为,从而极大地增进我们对作为不确定性管理者的照顾者的了解。