Perry-Woodford Zarah L
Pouch Nurse Practitioner at St Marks Hospital, London.
Br J Nurs. 2013;22(16):S23-8. doi: 10.12968/bjon.2013.22.Sup16.S23.
This article describes a novel qualitative study exploring the lived experience of participants having undergone ileoanal pouch failure, on a background of ulcerative colitis (UC). It focuses on the impact of living with indefinite diversion of the pouch and a permanent end ileostomy. Six participants were interviewed with an aim to establish their experience of pouch failure and the support they required. Five pertinent themes emerged that suggested participants did not expect pouch failure and were unprepared for the regression towards UC. Some participants recommenced drug therapy, wore pads to manage leakage from the diverted pouch, avoided certain social settings or manipulated diet and lifestyle in order to gain an acceptable quality of life with a permanent ileostomy. Pouch failure potentially presents adverse effects on patients' quality of life, but currently there is a deficit in support and resources available in order to provide acceptable outcomes for patients experiencing pouch failure.
本文描述了一项新颖的定性研究，该研究探讨了患有回肠储袋肛管吻合术失败的参与者在溃疡性结肠炎（UC）背景下的生活经历。它聚焦于永久性回肠造口术及储袋不确定分流对生活的影响。研究对6名参与者进行了访谈，旨在了解他们储袋失败的经历以及所需的支持。出现了五个相关主题，表明参与者并未预料到储袋会失败，也未对病情回归到溃疡性结肠炎做好准备。一些参与者重新开始药物治疗，使用护垫来处理分流储袋的渗漏，避免某些社交场合，或调整饮食和生活方式，以便在永久性回肠造口术的情况下获得可接受的生活质量。储袋失败可能会对患者的生活质量产生不利影响，但目前在为经历储袋失败的患者提供可接受的治疗结果方面，支持和资源存在不足。
