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艾滋病毒对血友病医疗服务的影响。

The impact of HIV on health care delivery in haemophilia.

作者信息

Rickard K A

机构信息

Haematology Department, Royal Prince Alfred Hospital, Sydney, N.S.W., Australia.

出版信息

Prog Clin Biol Res. 1990;324:101-11.

PMID:2408049
Abstract

The impact of HIV infection on health care delivery in haemophilia has been enormous and epoch making. Essential modifications and developments in blood product preparation have led to a shortage of FVIII concentrates and an increased cost to the consumer of the final product. The complexity and extent of the clinical complications in HIV positive haemophiliacs has opened up entirely new medical approaches to haemophilia care. The impact of the antibody positive haemophiliac on his immediate and extended family has been deeply emotional. Health care workers initially developed a negative and hostile approach to the haemophiliac group. This attitude has softened but there has been a drop-out of medical and paramedical staff involved in health care delivery in haemophilia. Finally, because of current viral safety and increased purity of factor VIII and IX concentrates, non infected haemophilic families may look to the future with increased optimism.

摘要

艾滋病毒感染对血友病医疗服务的影响巨大且具有划时代意义。血液制品制备方面的必要改进和发展导致了凝血因子VIII浓缩剂短缺,最终产品消费者成本增加。艾滋病毒阳性血友病患者临床并发症的复杂性和程度为血友病护理开辟了全新的医疗方法。抗体阳性血友病患者对其直系亲属和大家庭的影响在情感上极为深刻。医护人员最初对血友病患者群体采取了消极和敌对的态度。这种态度虽已有所缓和,但参与血友病医疗服务的医务人员和辅助医务人员有所减少。最后,由于目前因子VIII和IX浓缩剂的病毒安全性提高和纯度增加,未感染的血友病家庭对未来可能会更加乐观。

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