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一项关于极早产儿产前咨询的定性研究。

A qualitative study of predelivery counselling for extreme prematurity.

作者信息

Young Elizabeth, Tsai Ellen, O'Riordan Anne

机构信息

Department of Pediatrics, St Michael's Hospital, Toronto;

出版信息

Paediatr Child Health. 2012 Oct;17(8):432-6. doi: 10.1093/pch/17.8.432.

Abstract

OBJECTIVE

To ascertain from parents of neonates born before 27 weeks' gestational age how to improve predelivery counselling for delivery room resuscitation.

METHODS

Qualitative ethnographic study using semistructured, face-to-face interviews of 10 families. Data were analyzed using a constant comparative method.

RESULTS

Parents had no previous knowledge about prematurity. They would have preferred prioritized information during predelivery counselling focused on the immediate risks to their child. Resuscitation wishes were inconsistently sought. Opportunities for repeat discussions involving both parents were often missed. Parents agreed that the opportunity to explicitly state resuscitation wishes should be offered. Additional materials, such as pamphlets or videos, would improve counselling.

CONCLUSIONS

Information about prematurity should be offered when the pregnancy is deemed high risk, with repeat counselling opportunities for both parents to discuss options. Once the decision is made to resuscitate, parents want the neonatal team to convey a message of hope and compassion.

摘要

目的

向孕周小于27周的新生儿父母了解如何改进产房复苏的产前咨询。

方法

采用定性人种学研究方法,对10个家庭进行半结构化面对面访谈。采用持续比较法分析数据。

结果

父母此前对早产一无所知。他们希望在产前咨询中优先获得侧重于孩子直接风险的信息。复苏意愿的询问不一致。经常错过让父母双方参与的反复讨论机会。父母一致认为应提供明确表达复苏意愿的机会。宣传册或视频等额外资料会改善咨询效果。

结论

当妊娠被视为高危时,应提供早产相关信息,并为父母双方提供反复咨询的机会以讨论各种选择。一旦做出复苏决定,父母希望新生儿团队传递希望和关爱的信息。

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