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本文引用的文献

1
What information do parents want from the antenatal consultation?父母希望从产前咨询中获得哪些信息?
Paediatr Child Health. 2007 Mar;12(3):191-6. doi: 10.1093/pch/12.3.191.
2
Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborns.父母在为高危新生儿进行产房复苏决策时所应用的价值观。
Pediatrics. 2008 Sep;122(3):583-9. doi: 10.1542/peds.2007-1972.
3
Ethical issues for parents of extremely premature infants.极早产儿父母面临的伦理问题。
J Paediatr Child Health. 2008 May;44(5):302-4. doi: 10.1111/j.1440-1754.2008.01301.x.
4
Deciding to resuscitate extremely premature babies: how do parents and neonatologists engage in the decision?决定对极早产儿进行复苏:父母和新生儿科医生如何参与决策?
Soc Sci Med. 2007 Apr;64(7):1487-500. doi: 10.1016/j.socscimed.2006.11.016. Epub 2006 Dec 28.
5
The ethics of neonatal resuscitation at the margins of viability: informed consent and outcomes.极低出生体重儿复苏的伦理学:知情同意与结果
J Pediatr. 2005 Nov;147(5):579-85. doi: 10.1016/j.jpeds.2005.06.002.
6
Comparison of mothers' and counselors' perceptions of predelivery counseling for extremely premature infants.母亲与咨询师对极早产儿产前咨询看法的比较。
Pediatrics. 2005 Jul;116(1):104-11. doi: 10.1542/peds.2004-1340.
7
Perinatal care at the threshold of viability.生存临界期的围产期护理。
Pediatrics. 2002 Nov;110(5):1024-7. doi: 10.1542/peds.110.5.1024.
8
Delivery room resuscitation decisions for extremely low birthweight infants in California.加利福尼亚州极低出生体重婴儿的产房复苏决策
J Perinatol. 2001 Jan-Feb;21(1):27-33. doi: 10.1038/sj.jp.7200477.
9
Delivery room resuscitation decisions for extremely premature infants.极早产儿产房复苏决策
Pediatrics. 1998 Sep;102(3 Pt 1):574-82. doi: 10.1542/peds.102.3.574.
10
The principles for family-centered neonatal care.以家庭为中心的新生儿护理原则。
Pediatrics. 1993 Nov;92(5):643-50.

一项关于极早产儿产前咨询的定性研究。

A qualitative study of predelivery counselling for extreme prematurity.

作者信息

Young Elizabeth, Tsai Ellen, O'Riordan Anne

机构信息

Department of Pediatrics, St Michael's Hospital, Toronto;

出版信息

Paediatr Child Health. 2012 Oct;17(8):432-6. doi: 10.1093/pch/17.8.432.

DOI:10.1093/pch/17.8.432
PMID:24082803
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3474383/
Abstract

OBJECTIVE

To ascertain from parents of neonates born before 27 weeks' gestational age how to improve predelivery counselling for delivery room resuscitation.

METHODS

Qualitative ethnographic study using semistructured, face-to-face interviews of 10 families. Data were analyzed using a constant comparative method.

RESULTS

Parents had no previous knowledge about prematurity. They would have preferred prioritized information during predelivery counselling focused on the immediate risks to their child. Resuscitation wishes were inconsistently sought. Opportunities for repeat discussions involving both parents were often missed. Parents agreed that the opportunity to explicitly state resuscitation wishes should be offered. Additional materials, such as pamphlets or videos, would improve counselling.

CONCLUSIONS

Information about prematurity should be offered when the pregnancy is deemed high risk, with repeat counselling opportunities for both parents to discuss options. Once the decision is made to resuscitate, parents want the neonatal team to convey a message of hope and compassion.

摘要

目的

向孕周小于27周的新生儿父母了解如何改进产房复苏的产前咨询。

方法

采用定性人种学研究方法,对10个家庭进行半结构化面对面访谈。采用持续比较法分析数据。

结果

父母此前对早产一无所知。他们希望在产前咨询中优先获得侧重于孩子直接风险的信息。复苏意愿的询问不一致。经常错过让父母双方参与的反复讨论机会。父母一致认为应提供明确表达复苏意愿的机会。宣传册或视频等额外资料会改善咨询效果。

结论

当妊娠被视为高危时,应提供早产相关信息,并为父母双方提供反复咨询的机会以讨论各种选择。一旦做出复苏决定,父母希望新生儿团队传递希望和关爱的信息。