Division of Hematology/Oncology, Department of Pediatrics, McMaster Children's Hospital, 1200 Main Street West, Hamilton, Ontario, L8N 3Z5, Canada.
BMC Med Inform Decis Mak. 2013 Oct 4;13:113. doi: 10.1186/1472-6947-13-113.
As adolescents with hemophilia approach adulthood, they are expected to assume responsibility for their disease management. A bilingual (English and French) Internet-based self-management program, "Teens Taking Charge: Managing Hemophilia Online," was developed to support adolescents with hemophilia in this transition. This study explored the usability of the website and resulted in refinement of the prototype.
A purposive sample (n=18; age 13-18; mean age 15.5 years) was recruited from two tertiary care centers to assess the usability of the program in English and French. Qualitative observations using a "think aloud" usability testing method and semi-structured interviews were conducted in four iterative cycles, with changes to the prototype made as necessary following each cycle. This study was approved by research ethics boards at each site.
Teens responded positively to the content and appearance of the website and felt that it was easy to navigate and understand. The multimedia components (videos, animations, quizzes) were felt to enrich the experience. Changes to the presentation of content and the website user-interface were made after the first, second and third cycles of testing in English. Cycle four did not result in any further changes.
Overall, teens found the website to be easy to use. Usability testing identified end-user concerns that informed improvements to the program. Usability testing is a crucial step in the development of Internet-based self-management programs to ensure information is delivered in a manner that is accessible and understood by users.
随着青少年血友病患者接近成年，他们有望承担起疾病管理的责任。一个双语（英语和法语）的基于互联网的自我管理项目“青少年负责：在线管理血友病”，旨在支持青少年血友病患者顺利过渡。本研究探讨了该网站的可用性，并对原型进行了改进。
从两家三级护理中心招募了 18 名（年龄 13-18 岁；平均年龄 15.5 岁）有目的的参与者来评估该项目在英语和法语中的可用性。在四个迭代周期中使用“出声思考”可用性测试方法和半结构化访谈进行定性观察，并在每个周期后根据需要对原型进行更改。本研究得到了每个地点的伦理委员会的批准。
青少年对网站的内容和外观反应积极，认为其易于浏览和理解。多媒体组件（视频、动画、测验）丰富了体验。在英语测试的第一、第二和第三周期后，对内容和网站用户界面的呈现方式进行了更改。第四周期没有产生任何进一步的更改。
总的来说，青少年发现该网站易于使用。可用性测试确定了最终用户的关注点，为项目的改进提供了信息。可用性测试是开发基于互联网的自我管理程序的关键步骤，以确保以用户可访问和理解的方式传递信息。
