Stinson Jennifer, McGrath Patrick, Hodnett Ellen, Feldman Brian, Duffy Ciaran, Huber Adam, Tucker Lori, Hetherington Ross, Tse Shirley, Spiegel Lynn, Campillo Sarah, Gill Navreet, White Meghan
Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, Canada.
J Med Internet Res. 2010 Jul 29;12(3):e30. doi: 10.2196/jmir.1349.
A new bilingual (English and French) Internet-based self-management program, Teens Taking Charge: Managing Arthritis Online, for adolescents with arthritis and their parents was developed following a needs assessment.
This study explored the usability (user performance and satisfaction) of the self-management program for youth with juvenile idiopathic arthritis (JIA) and their parents to refine the health portal prototype.
A qualitative study design with semi-structured, audio taped interviews and observation by a trained observer was undertaken with two iterative cycles to determine the usability (ease of use, efficiency, errors, and user satisfaction) of the user interface and content areas of the intervention. A purposive sample of English-speaking (n = 11; mean age = 15.4, standard deviation [SD] 1.7) and French-speaking (n = 8; mean age = 16.0, SD 1.2) adolescents with JIA and one of their respective parents/caregivers were recruited from 2 Canadian tertiary care centers. Descriptive statistics and simple content analyses were used to organize data into categories that reflected the emerging usability themes.
All of the participants had access to a computer/Internet at home; however, adolescents were more comfortable using the computer/Internet than their parents. Adolescents and parents provided similar as well as differing suggestions on how the website user interface could be improved in terms of its usability (navigation; presentation and control usage errors; format and layout; as well as areas for further content development). There were no major differences in usability issues between English- and French-speaking participants. Minor changes to the website user interface were made and tested in a second cycle of participants. No further usability problems were identified in the second iterative cycle of testing. Teens and parents responded positively to the appearance and theme of the website (ie, promoting self-management) and felt that it was easy to navigate, use, and understand. Participants felt that the content was appropriate and geared to meet the unique needs of adolescents with JIA and their parents as well as English- and French-speaking families. Many participants responded that the interactive features (discussion board, stories of hope, and video clips of youth with JIA) made them feel supported and "not alone" in their illness.
We describe the usability testing of a self-management health portal designed for English- and French-speaking youth with arthritis and their parents, which uncovered several usability issues. Usability testing is a crucial step in the development of self-management health portals to ensure that the various end users (youth and parents) have the ability to access, understand, and use health-related information and services that are delivered via the Internet and that they are delivered in an efficient, effective, satisfying, and culturally competent manner.
在进行需求评估后，开发了一个新的基于互联网的双语（英语和法语）自我管理项目“青少年掌控：在线管理关节炎”，面向患有关节炎的青少年及其父母。
本研究探讨了针对青少年特发性关节炎（JIA）患儿及其父母的自我管理项目的可用性（用户表现和满意度），以完善健康门户网站原型。
采用定性研究设计，通过半结构化的录音访谈以及由经过培训的观察员进行观察，进行了两个迭代周期的研究，以确定干预措施的用户界面和内容领域的可用性（易用性、效率、错误情况和用户满意度）。从加拿大的2个三级护理中心招募了有目的的样本，包括说英语的JIA青少年（n = 11；平均年龄 = 15.4，标准差[SD] 1.7）和说法语的JIA青少年（n = 8；平均年龄 = 16.0，SD 1.2）以及他们各自的一位父母/照顾者。使用描述性统计和简单的内容分析将数据整理成反映新出现的可用性主题的类别。
所有参与者家中都可使用计算机/互联网；然而，青少年比他们的父母更习惯使用计算机/互联网。青少年和父母就如何改进网站用户界面的可用性（导航；呈现和控件使用错误；格式和布局；以及进一步内容开发的领域）提出了相似和不同的建议。说英语和说法语的参与者在可用性问题上没有重大差异。对网站用户界面进行了微小更改，并在第二轮参与者中进行了测试。在第二轮迭代测试中未发现进一步的可用性问题。青少年和父母对网站的外观和主题（即促进自我管理）给予了积极回应，并认为其易于导航、使用和理解。参与者认为内容合适，适合满足患JIA的青少年及其父母以及说英语和说法语家庭的独特需求。许多参与者表示，互动功能（讨论板、希望故事以及患JIA青少年的视频片段）让他们在患病过程中感到得到支持且“不孤单”。
我们描述了一个为患有关节炎的英语和法语青少年及其父母设计的自我管理健康门户网站的可用性测试，该测试发现了几个可用性问题。可用性测试是自我管理健康门户网站开发中的关键步骤，以确保各类最终用户（青少年和父母）有能力访问、理解和使用通过互联网提供的与健康相关的信息和服务，并且这些信息和服务是以高效、有效、令人满意且具有文化胜任力的方式提供的。
