1University of British Columbia, Vancouver, Canada.
J Fam Nurs. 2014 Feb;20(1):73-97. doi: 10.1177/1074840713507777. Epub 2013 Oct 11.
Care work by family and friends is recognized as a cornerstone of community-based care for older adults; however, the role of families in institutional-based care work has been less well understood and researched. Drawing on findings from a critical ethnographic study, this article aims to examine the unique role of highly involved family members within long-term residential care. The study took place between October 2006 and April 2008 in two facilities in British Columbia, Canada. A purposive sample of 11 highly involved family members participated in in-depth interviews and participant observations. The main themes were "Hands-On," "Hands-Off," "Surveillance," and "Interlopers." These themes illuminate the ways in which highly involved family members engaged in care work, including how they positioned themselves and were positioned by staff and administrators. Implications of the study focus on the need to include families in philosophies of care and policies that shape care work in long-term residential care.
家庭和朋友提供的护理工作被认为是社区老年人护理的基石；然而，家庭在机构护理工作中的作用还不太为人理解和研究。本文以批判民族志研究的发现为基础，旨在探讨高度参与的家庭成员在长期居住护理中的独特作用。该研究于 2006 年 10 月至 2008 年 4 月在加拿大不列颠哥伦比亚省的两个设施中进行。一个目的抽样的 11 名高度参与的家庭成员参加了深入的访谈和参与观察。主要主题是“亲力亲为”、“放手”、“监督”和“干扰者”。这些主题阐明了高度参与的家庭成员从事护理工作的方式，包括他们如何定位自己以及被工作人员和管理人员定位的方式。该研究的意义在于需要将家庭纳入护理理念和政策中，以塑造长期居住护理中的护理工作。
