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本文引用的文献

1
Root cause analysis reports help identify common factors in delayed diagnosis and treatment of outpatients.根本原因分析报告有助于识别门诊延迟诊断和治疗的常见因素。
Health Aff (Millwood). 2013 Aug;32(8):1368-75. doi: 10.1377/hlthaff.2013.0130.
2
Interventions for providers to promote a patient-centred approach in clinical consultations.为医疗服务提供者提供的干预措施，以促进临床会诊中以患者为中心的方法。
Cochrane Database Syst Rev. 2012 Dec 12;12(12):CD003267. doi: 10.1002/14651858.CD003267.pub2.
3
Association of online patient access to clinicians and medical records with use of clinical services.患者在线获取临床医生和病历信息与临床服务使用的关联。
JAMA. 2012 Nov 21;308(19):2012-9. doi: 10.1001/jama.2012.14126.
4
Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead.邀请患者阅读医生的记录：一项准实验研究及前瞻性观察。
Ann Intern Med. 2012 Oct 2;157(7):461-70. doi: 10.7326/0003-4819-157-7-201210020-00002.
5
Personal health records and hypertension control: a randomized trial.个人健康记录与高血压控制：一项随机试验。
J Am Med Inform Assoc. 2012 Jul-Aug;19(4):626-34. doi: 10.1136/amiajnl-2011-000349. Epub 2012 Jan 10.
6
Should patients get direct access to their laboratory test results? An answer with many questions.患者应该直接获取他们的实验室检查结果吗？这是一个有着诸多问题的答案。
JAMA. 2011 Dec 14;306(22):2502-3. doi: 10.1001/jama.2011.1797. Epub 2011 Nov 28.
7
The association between personal health record use and diabetes quality measures.个人健康记录使用与糖尿病质量指标之间的关联。
J Gen Intern Med. 2012 Apr;27(4):420-4. doi: 10.1007/s11606-011-1889-0. Epub 2011 Oct 18.
8
Full access to medical records does not modify anxiety in cancer patients: results of a randomized study.癌症患者的完全病历查阅并未改变其焦虑状况：一项随机研究的结果。
Cancer. 2011 Oct 15;117(20):4796-804. doi: 10.1002/cncr.26083. Epub 2011 May 23.
9
The digital divide in adoption and use of a personal health record.个人健康记录采用与使用方面的数字鸿沟。
Arch Intern Med. 2011 Mar 28;171(6):568-74. doi: 10.1001/archinternmed.2011.34.
10
Patient involvement in patient safety: How willing are patients to participate?患者参与患者安全：患者愿意参与的程度如何？
BMJ Qual Saf. 2011 Jan;20(1):108-14. doi: 10.1136/bmjqs.2010.041871.

患者获取病历和医疗结果：系统评价。

Patient access to medical records and healthcare outcomes: a systematic review.

机构信息

Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety, Michael E. DeBakey Veterans Affairs Medical Center and the Section of Health Services Research, Department of Medicine, Baylor College of Medicine, Houston, Texas, USA Graduate College of Social Work, University of Houston, Houston, Texas, USA.

Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety, Michael E. DeBakey Veterans Affairs Medical Center and the Section of Health Services Research, Department of Medicine, Baylor College of Medicine, Houston, Texas, USA.

出版信息

J Am Med Inform Assoc. 2014 Jul-Aug;21(4):737-41. doi: 10.1136/amiajnl-2013-002239. Epub 2013 Oct 23.

DOI:10.1136/amiajnl-2013-002239
PMID:24154835
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4078277/
Abstract

OBJECTIVES

We conducted a systematic review to determine the effect of providing patients access to their medical records (electronic or paper-based) on healthcare quality, as defined by measures of safety, effectiveness, patient-centeredness, timeliness, efficiency, and equity.

METHODS

Articles indexed in PubMed from January 1970 to January 2012 were reviewed. Twenty-seven English-language controlled studies were included. Outcomes were categorized as measures of effectiveness (n=19), patient-centeredness (n=16), and efficiency (n=2); no study addressed safety, timeliness, or equity.

RESULTS

Outcomes were equivocal with respect to several aspects of effectiveness and patient-centeredness. Efficiency outcomes in terms of frequency of in-person and telephone encounters were mixed. Access to health records appeared to enhance patients' perceptions of control and reduced or had no effect on patient anxiety.

CONCLUSION

Although few positive findings generally favored patient access, the literature is unclear on whether providing patients access to their medical records improves quality.

摘要

目的

我们进行了一项系统评价，以确定为患者提供获取其病历（电子或纸质）的机会对医疗质量的影响，医疗质量由安全性、有效性、以患者为中心、及时性、效率和公平性等方面的衡量标准来定义。

方法

我们对 1970 年 1 月至 2012 年 1 月期间在 PubMed 上索引的文章进行了回顾。纳入了 27 项英语对照研究。研究结果分为有效性（n=19）、以患者为中心（n=16）和效率（n=2）的衡量标准；没有研究涉及安全性、及时性或公平性。

结果

就有效性和以患者为中心的几个方面而言，研究结果存在分歧。就面对面和电话就诊的频率而言，效率方面的结果喜忧参半。获取健康记录似乎增强了患者的控制感，降低了或没有降低患者的焦虑感。

结论

尽管少数积极发现通常有利于患者获得医疗记录，但文献尚不清楚为患者提供获取其医疗记录的机会是否能提高医疗质量。