Is a requirement of personalised assent realistic? A case from the GABRIEL project.
作者信息
Waligora Marcin
机构信息
Department of Philosophy and Bioethics, Jagiellonian University, Medical College, Krakow, Poland.
出版信息
Eur J Hum Genet. 2014 Jul;22(7):855. doi: 10.1038/ejhg.2013.259. Epub 2013 Nov 6.
Abstract
摘要
相似文献
1
Is a requirement of personalised assent realistic? A case from the GABRIEL project.个性化同意的要求现实吗？来自加布里埃尔项目的一个案例。
Eur J Hum Genet. 2014 Jul;22(7):855. doi: 10.1038/ejhg.2013.259. Epub 2013 Nov 6.
2
Children are not small adults: documentation of assent for research involving children.儿童并非缩小版的成人：关于儿童参与研究的同意书记录。
J Pediatr. 2006 Jul;149(1 Suppl):S31-3. doi: 10.1016/j.jpeds.2006.04.048.
3
Assent for children's participation in research is incoherent and wrong.同意儿童参与研究是不一致和错误的。
Arch Dis Child. 2011 Oct;96(10):960-2. doi: 10.1136/adc.2011.211342. Epub 2011 Jul 19.
4
Personalized assent for pediatric biobanks.儿科生物样本库的个性化同意
BMC Med Ethics. 2016 Oct 12;17(1):59. doi: 10.1186/s12910-016-0142-0.
5
Enhancing research ethics decision-making: an REB decision bank.加强研究伦理决策：一个研究伦理委员会决策库
IRB. 2010 Nov-Dec;32(6):9-12.
6
Consent and assent in paediatric research in low-income settings.低收入环境下儿科研究中的同意与赞成。
BMC Med Ethics. 2014 Mar 5;15:22. doi: 10.1186/1472-6939-15-22.
7
Reply to Waligora.回复瓦利戈拉。
Eur J Hum Genet. 2014 Jul;22(7):855. doi: 10.1038/ejhg.2013.260. Epub 2013 Nov 6.
8
'Prodromal' research and clinical services: the imperative for shared decision-making.前驱期研究与临床服务：共同决策的必要性
Aust N Z J Psychiatry. 2012 Jan;46(1):66. doi: 10.1177/0004867411427813.
9
Clarification.澄清。
Arch Dis Child. 2015 Mar;100(3):291. doi: 10.1136/archdischild-2013-304871.cl.
10
Social restrictions on informed consent: research ethics and medical decision making.知情同意的社会限制：研究伦理与医疗决策
HEC Forum. 2004 Mar;16(1):38-44. doi: 10.1023/b:hecf.0000031778.43876.28.
引用本文的文献
1
Recent effective population size in Eastern European plain Russians correlates with the key historical events.近代东欧平原俄罗斯人的有效种群规模与关键历史事件相关。
Sci Rep. 2020 Jun 16;10(1):9729. doi: 10.1038/s41598-020-66734-y.
2
Personalized assent for pediatric biobanks.儿科生物样本库的个性化同意
BMC Med Ethics. 2016 Oct 12;17(1):59. doi: 10.1186/s12910-016-0142-0.
3
Child's objection to non-beneficial research: capacity and distress based models.儿童对非有益性研究的反对：基于能力和痛苦的模型
Med Health Care Philos. 2016 Mar;19(1):65-70. doi: 10.1007/s11019-015-9643-8.
4
Child's assent in research: age threshold or personalisation?儿童在研究中的同意：年龄阈值还是个性化？
BMC Med Ethics. 2014 Jun 13;15:44. doi: 10.1186/1472-6939-15-44.
5
Reply to Waligora.回复瓦利戈拉。
Eur J Hum Genet. 2014 Jul;22(7):855. doi: 10.1038/ejhg.2013.260. Epub 2013 Nov 6.
本文引用的文献
1
Clarifying assent in pediatric research.明确儿科研究中的同意程序。
Eur J Hum Genet. 2014 Feb;22(2):266-9. doi: 10.1038/ejhg.2013.119. Epub 2013 Jun 12.
2
A European consistency for functioning of RECs? We just lost our chance.欧洲的 REC 运作协调一致性？我们刚刚错失了机会。
J Med Ethics. 2013 Jun;39(6):408-9. doi: 10.1136/medethics-2012-101228. Epub 2012 Dec 8.
3
Opinions of children about participation in medical genetic research.儿童对参与医学基因研究的看法。
Public Health Genomics. 2011;14(4-5):271-8. doi: 10.1159/000294173. Epub 2010 Apr 9.
Zotero 插件