Tierney Stephanie, O'Brien Kevin, Harman Nicola L, Sharma Ravi K, Madden Colm, Callery Peter
Cleft Palate Craniofac J. 2015 Jan;52(1):23-30. doi: 10.1597/13-139.
To explore the views of children with cleft palate and their parents about daily life with otitis media with effusion and associated hearing loss.
A qualitative study. Semistructured interviews were used to collect data from parents. Participatory techniques, including activities on a tablet computer, were used to collect data from children. Framework analysis was applied to interview transcripts.
Two English cleft units.
A purposive sample of parents of 37 children aged 0 to 11 years with experience of otitis media with effusion. Their children also took part if aged 6 to 11 years (n = 22).
Themes related to the following: (1) emotions (frustration, anger, sadness, happiness, anxiety), (2) educational experiences (struggling at school, having to sit at the front of the class, requiring extra support, missing lessons for appointments or due to ear infections), (3) social interactions (isolation, communication, reliance on siblings, participation in activities).
A number of areas of interviewees' everyday life were affected by the presence of otitis media with effusion. Parents may need to be forewarned about the possible ongoing nature of this condition and its impact on a child's social and emotional experiences. Children may also benefit from age-appropriate information about otitis media with effusion and its treatment, including information on hearing tests, to help reduce any anxiety.
探讨腭裂患儿及其父母对伴有积液性中耳炎及相关听力损失的日常生活的看法。
一项定性研究。采用半结构化访谈从父母那里收集数据。采用参与性技术，包括在平板电脑上开展活动，从儿童那里收集数据。对访谈记录应用框架分析。
两个英国腭裂治疗中心。
从37名0至11岁有积液性中耳炎经历的儿童的父母中进行目的抽样。如果孩子年龄在6至11岁（n = 22），他们也参与。
主题涉及以下方面：（1）情绪（沮丧、愤怒、悲伤、快乐、焦虑），（2）教育经历（在学校学习困难、不得不坐在教室前排、需要额外支持、因预约或耳部感染缺课），（3）社交互动（孤立、沟通、依赖兄弟姐妹、参与活动）。
受访者日常生活的多个方面受到积液性中耳炎的影响。可能需要预先告知父母这种情况可能的持续性及其对孩子社交和情感体验的影响。儿童也可能受益于关于积液性中耳炎及其治疗的适龄信息，包括听力测试信息，以帮助减轻焦虑。
