Loon Marije S Koelewijn-van, van Dijk-de Vries Anneke, van der Weijden Trudy, Elwyn Glyn, Widdershoven Guy Am
Maastricht University, The Netherlands.
Maastricht University, The Netherlands
Nurs Ethics. 2014 Aug;21(5):540-53. doi: 10.1177/0969733013505313. Epub 2013 Nov 19.
Involving patients in decisions on primary prevention can be questioned from an ethical perspective, due to a tension between health promotion activities and patient autonomy. A nurse-led intervention for prevention of cardiovascular diseases, including counselling (risk communication, and elements of shared decision-making and motivational interviewing) and supportive tools such as a decision aid, was implemented in primary care. The aim of this study was to evaluate the nurse-led intervention from an ethical perspective by exploring in detail the experiences of patients with the intervention, and their views on the role of both the nurse and patient. The study had a qualitative design. 18 patients who had received the intervention participated. Data were gathered by in-depth interviews. The interviews were analysed using directed content analysis. The findings revealed that patients perceived the consultations not as an infringement on their autonomy, but as supportive to risk reduction efforts they tried but found hard to realise. They specifically emphasised the role of the nurse, and appreciated the nurse's realistic advice, encouragement, and help in understanding. Patients' views on and experiences with risk management are in line with notions of relational autonomy, caring cooperation and communicative action found in the literature. We conclude that patients define the relationship with the nurse as shared work in the process of developing a healthier lifestyle.
从伦理角度来看,让患者参与一级预防决策可能会受到质疑,因为健康促进活动与患者自主权之间存在矛盾。在初级保健中实施了一项由护士主导的心血管疾病预防干预措施,包括咨询(风险沟通、共同决策要素和动机性访谈)以及诸如决策辅助工具等支持手段。本研究的目的是从伦理角度评估护士主导的干预措施,具体方法是详细探究患者对该干预措施的体验,以及他们对护士和患者角色的看法。该研究采用定性设计。18名接受过干预措施的患者参与其中。通过深度访谈收集数据。运用定向内容分析法对访谈进行分析。研究结果显示,患者并不认为咨询是对其自主权的侵犯,而是对他们尝试但难以实现的降低风险努力的支持。他们特别强调了护士的作用,并赞赏护士切实可行的建议、鼓励以及在理解方面给予的帮助。患者对风险管理的看法和体验与文献中所提及的关系自主性、关怀性合作及沟通行动的概念相符。我们得出结论,患者将与护士的关系定义为在形成更健康生活方式过程中的共同努力。