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帕金森病患者成为护理伙伴。

Parkinson patients as partners in care.

机构信息

Carolinas Rehabilitation, Department of Physical Medicine and Rehabilitation, Charlotte, NC, USA.

出版信息

Parkinsonism Relat Disord. 2014 Jan;20 Suppl 1:S174-9. doi: 10.1016/S1353-8020(13)70041-5.

DOI:10.1016/S1353-8020(13)70041-5
PMID:24262175
Abstract

Increasing physical activity, as part of an active lifestyle, is an important health goal for individuals with Parkinson's disease (PD). Exercise can positively impact health related quality of life. Given this, how can we promote physically active lifestyles among PD patients (most of whom are sedentary)? Here we suggest that health care professionals could significantly expand their impact by collaborating with PD patients and their spouses (or caregivers) as partners-in-care. We outline reasons why partners-in-care approaches are important in PD, including the need to increase social capital, which deals with issues of trust and the value of social networks in linking members of a community. We then present results of a qualitative study involving partners-in-care exercise beliefs among 19 PD patients and spouses, and conclude with our perspective on future benefits of this approach.

摘要

增加身体活动量,作为积极生活方式的一部分,是帕金森病(PD)患者的一个重要健康目标。运动可以对与健康相关的生活质量产生积极影响。考虑到这一点,我们如何才能在 PD 患者中(其中大多数人久坐不动)促进积极的生活方式呢?在这里,我们建议医疗保健专业人员可以通过与 PD 患者及其配偶(或照顾者)合作,将他们作为护理伙伴,从而显著扩大他们的影响力。我们概述了为什么在 PD 中伙伴式护理方法很重要的原因,包括需要增加社会资本,社会资本涉及信任问题以及社区成员之间的社交网络的价值。然后,我们介绍了一项涉及 19 名 PD 患者及其配偶的关于伙伴式护理锻炼信念的定性研究的结果,并得出了对这种方法未来益处的看法。

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Beyond patient-centered care: person-centered care for Parkinson's disease.超越以患者为中心的护理:帕金森病的以人为本的护理
NPJ Parkinsons Dis. 2016 Sep 22;2:16019. doi: 10.1038/npjparkd.2016.19. eCollection 2016.
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Non-exercise physical activity attenuates motor symptoms in Parkinson disease independent from nigrostriatal degeneration.非运动性身体活动可减轻帕金森病的运动症状,且独立于黑质纹状体变性。
Parkinsonism Relat Disord. 2015 Oct;21(10):1227-31. doi: 10.1016/j.parkreldis.2015.08.027. Epub 2015 Aug 28.
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J Sci Med Sport. 2016 Jan;19(1):12-7. doi: 10.1016/j.jsams.2015.01.005. Epub 2015 Feb 7.
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