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我们能否优化我们的团队?多发性硬化症的多学科护理。

Can we optimize our teams? Multidisciplinary care for multiple sclerosis.

机构信息

Service de Neurologie, CHU Montpied, Faculté de Médecine, U 1107 NeuroDol, Université d'Auvergne, Clermont-Ferrand, France.

出版信息

Expert Rev Neurother. 2013 Dec;13(12 Suppl):39-44. doi: 10.1586/14737175.2013.865873.

DOI:10.1586/14737175.2013.865873
PMID:24289841
Abstract

Established in 2003, the multiple sclerosis (MS) regional hospital network in the Auvergne area of France links not only neurologists but also many other specialists (e.g., urologists, ophthalmologists) and more than 400 other allied healthcare professionals (including physiotherapists, nurses, occupational therapists) involved in the care of patients with MS. This multidisciplinary network aims to improve quality of care for an estimated 1600 + MS patients in the Auvergne region through numerous training courses and medical support programs. The initiative is supported by the regional regulatory authority and receives public funding from the Auvergne regional state health insurance office. The Auvergne MS network has facilitated improvements in quality of care by coordinating patient care in the proximal vicinity of the patient's home and has provided useful information about MS epidemiology (incidence and prevalence) in the region. Using a multidisciplinary approach, the Auvergne MS network has explored other avenues of domiciliary-based care to seek improvements in the patient-centered management of MS. These include: access to high-dose methylprednisolone in the home, ensuring appropriate supervision and support; participation in national clinical research programs coordinated from hospital centers of excellence; provision of multidisciplinary clinic services where healthcare professionals across different disciplines can attend to the patient on the same day in the same center of care; development of individual and group-based cognitive therapy programs; educational programs focusing on the management of fatigue and cognitive impairment associated with MS; and educational programs focusing on optimal use of immunomodulating agents in MS patients.

摘要

法国奥弗涅地区的多发性硬化症(MS)区域医院网络成立于 2003 年,不仅联系了神经科医生,还联系了许多其他专家(如泌尿科医生、眼科医生)以及 400 多名其他参与 MS 患者护理的医疗保健专业人员(包括物理治疗师、护士、职业治疗师)。该多学科网络旨在通过众多培训课程和医疗支持计划,提高奥弗涅地区约 1600 多名 MS 患者的护理质量。该倡议得到了地区监管机构的支持,并从奥弗涅地区国家健康保险办公室获得公共资金。奥弗涅 MS 网络通过协调患者在离家较近的地方的护理,改善了护理质量,并提供了有关该地区 MS 流行病学(发病率和患病率)的有用信息。奥弗涅 MS 网络采用多学科方法,探讨了其他基于家庭的护理途径,以寻求改善以患者为中心的 MS 管理。这些途径包括:在家中获得大剂量甲基强的松龙,确保适当的监督和支持;参与从卓越医院中心协调的国家临床研究计划;提供多学科诊所服务,不同学科的医疗保健专业人员可以在同一天在同一护理中心为患者就诊;制定个人和团体认知疗法计划;关注与 MS 相关的疲劳和认知障碍管理的教育计划;以及关注 MS 患者免疫调节药物最佳使用的教育计划。

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Nat Rev Neurol. 2025 Jul 23. doi: 10.1038/s41582-025-01115-5.
2
Occupational Therapy in Fatigue Management in Multiple Sclerosis: An Umbrella Review.多发性硬化症疲劳管理中的职业疗法:一项综合综述。
Mult Scler Int. 2019 Mar 21;2019:2027947. doi: 10.1155/2019/2027947. eCollection 2019.
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