de Kloet Arend J, Berger Monique A M, Bedell Gary M, Catsman-Berrevoets Coriene E, van Markus-Doornbosch Frederike, Vliet Vlieland Thea P M
a Sophia Rehabilitation , The Hague , The Netherlands .
b Department of Research & Development , The Hague University of Applied Sciences , The Hague , The Netherlands .
Dev Neurorehabil. 2015;18(6):357-64. doi: 10.3109/17518423.2013.850749. Epub 2013 Dec 4.
The Child and Family Follow-up Survey (CFFS) is developed to monitor long-term outcomes of children and youth with acquired brain injury (ABI). The aim of this study was to translate and adapt it into the Dutch language and to evaluate its reliability and validity.
The CFFS includes the Child and Adolescent Scale of Participation (CASP), the Child and Adolescent Factors Inventory (CAFI) and the Child and Adolescent Scale of Environment (CASE). The CFFS was translated into Dutch following international guidelines and adapted. The internal consistency, validity and test-retest reliability were examined among two groups of patients (n = 140 and n = 27) in the age of 5-22 years with ABI and their parents.
The translation and adaptation resulted in the CFFS-DLV, Dutch language version. The CASP-DLV, CAFI-DLV and CASE-DLV had a good internal consistency, with Cronbach's alpha being 0.95, 0.89 and 0.83, respectively. There were statistically significant correlations among the three CFFS subscale scores. These scores were also significantly correlated with the total scores of the Pediatric Quality of Life Inventory (PedsQL, parent) and the Pediatric Stroke Outcome Measure, but not with the domain scores of the Children's Assessment of Participation and Enjoyment (CAPE). The test-retest reliability was good to moderate, with the intra-class correlation coefficients being 0.90 for the CASP-DLV, 0.95 for the CAFI-DLV and 0.81 for the CASE-DLV.
The CFFS-DLV, as translation and adaptation of the CFFS into Dutch, proved to be a promising instrument to measure long-term outcomes of children and youth with ABI. Further research is needed to examine its responsiveness to change and potential in other patient groups.
儿童与家庭随访调查（CFFS）旨在监测获得性脑损伤（ABI）儿童和青少年的长期预后。本研究的目的是将其翻译成荷兰语并进行改编，同时评估其信效度。
CFFS包括儿童和青少年参与量表（CASP）、儿童和青少年因素量表（CAFI）以及儿童和青少年环境量表（CASE）。按照国际指南将CFFS翻译成荷兰语并进行改编。对两组年龄在5至22岁的ABI患者及其父母进行内部一致性、效度和重测信度检验（n = 140和n = 27）。
翻译和改编后得到了CFFS - DLV，即荷兰语版本。CASP - DLV、CAFI - DLV和CASE - DLV具有良好的内部一致性，Cronbach's α系数分别为0.95、0.89和0.83。CFFS三个子量表得分之间存在统计学显著相关性。这些得分也与儿童生活质量量表（PedsQL，家长版）和儿童卒中结局量表的总分显著相关，但与儿童参与和享受评估（CAPE）的领域得分无关。重测信度良好至中等，组内相关系数CASP - DLV为0.90，CAFI - DLV为0.95，CASE - DLV为0.81。
CFFS - DLV作为CFFS翻译成荷兰语后的版本，被证明是测量ABI儿童和青少年长期预后的一种有前景的工具。需要进一步研究以检验其对变化的反应性以及在其他患者群体中的潜力。
