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The hidden and forgotten evidence.隐藏且被遗忘的证据。
Scand J Caring Sci. 2012 Dec;26(4):625-6. doi: 10.1111/scs.12012.
2
Nurse-patient collaboration: a grounded theory study of patients with chronic obstructive pulmonary disease on non-invasive ventilation.护患合作:一项针对慢性阻塞性肺疾病无创通气患者的扎根理论研究。
Int J Nurs Stud. 2013 Jan;50(1):26-33. doi: 10.1016/j.ijnurstu.2012.08.013. Epub 2012 Sep 25.
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Evaluation of self-management interventions for chronic obstructive pulmonary disease.慢性阻塞性肺疾病自我管理干预措施的评估。
J Nurs Manag. 2012 Sep;20(6):802-13. doi: 10.1111/j.1365-2834.2012.01469.x.
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Nurs Philos. 2012 Oct;13(4):236-43. doi: 10.1111/j.1466-769X.2012.00537.x.
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Intensive care unit nurses' perceptions of patient participation in the acute phase of chronic obstructive pulmonary disease exacerbation: an interview study.重症监护病房护士对慢性阻塞性肺疾病加重期患者参与急性阶段的看法:一项访谈研究。
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Struggling to retain living space: patients' stories about living with advanced chronic obstructive pulmonary disease.挣扎求生:晚期慢性阻塞性肺疾病患者的生存故事。
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Experiences of self-blame and stigmatisation for self-infliction among individuals living with COPD.慢性阻塞性肺疾病患者自我施加的自责和污名化经历。
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How to cope with the mask? Experiences of mask treatment in patients with acute chronic obstructive pulmonary disease-exacerbations.如何应对面罩?急性慢性阻塞性肺疾病加重期患者面罩治疗的经验。
Scand J Caring Sci. 2010 Sep;24(3):499-506. doi: 10.1111/j.1471-6712.2009.00740.x.
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慢性阻塞性肺疾病急性加重患者在重症监护病房的就医体验如何?

How do patients with exacerbated chronic obstructive pulmonary disease experience care in the intensive care unit?

作者信息

Torheim Henny, Kvangarsnes Marit

机构信息

Helse Møre og Romsdal, Aalesund, Norway; Faculty of Health Sciences, Aalesund University College, Aalesund, Norway.

出版信息

Scand J Caring Sci. 2014 Dec;28(4):741-8. doi: 10.1111/scs.12106. Epub 2013 Dec 9.

DOI:10.1111/scs.12106
PMID:24313779
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4260168/
Abstract

The aim was to gain insight into how patients with advanced chronic obstructive pulmonary disease (COPD) experience care in the acute phase. The study has a qualitative design with a phenomenological approach. The empirics consist of qualitative in-depth interviews with ten patients admitted to the intensive care units in two Norwegian hospitals. The interviews were carried out from November 2009 to June 2011. The data have been analysed through meaning condensation, in accordance with Amadeo Giorgi's four-step method. Kari Martinsen's phenomenological philosophy of nursing has inspired the study. An essential structure of the patients' experiences of care in the intensive care unit by acute COPD-exacerbation may be described as: Feelings of being trapped in a life-threatening situation in which the care system assumes control over their lives. This experience is conditioned not only by the medical treatment, but also by the entire interaction with the caregivers. The essence of the phenomenon is presented through three themes which describe the patient's lived experience: preserving the breath of life, vulnerable interactions and opportunities for better health. Acute COPD-exacerbation is a traumatic experience and the patients become particularly vulnerable when they depend on others for breathing support. The phenomenological analysis shows that the patients experience good care during breath of life preservation when the care is performed in a way that gives patients more insight into their illness and gives new opportunities for the future.

摘要

目的是深入了解晚期慢性阻塞性肺疾病(COPD)患者在急性期的护理体验。该研究采用现象学方法进行定性设计。实证部分包括对挪威两家医院重症监护病房收治的10名患者进行的定性深入访谈。访谈于2009年11月至2011年6月期间进行。数据已根据阿玛迪奥·乔吉的四步法通过意义浓缩进行分析。卡里·马丁森的现象学护理哲学启发了这项研究。急性COPD加重期患者在重症监护病房的护理体验的一个基本结构可描述为:感觉被困在危及生命的情境中,护理系统掌控着他们的生活。这种体验不仅受医疗治疗的影响,还受与护理人员的整个互动的影响。该现象的本质通过三个描述患者实际体验的主题呈现:维系生命的呼吸、脆弱的互动以及改善健康的机会。急性COPD加重期是一次创伤性经历,当患者依赖他人提供呼吸支持时,他们会变得格外脆弱。现象学分析表明,当护理以一种让患者更深入了解自身疾病并为未来带来新机会的方式进行时,患者在维系生命的呼吸期间会体验到良好的护理。