Eilertsen Mary-Elizabeth Bradley, Eilegård Alexandra, Steineck Gunnar, Nyberg Tommy, Kreicbergs Ulrika
1Sør-Trøndelag University College, Trondheim, Norway.
J Pediatr Oncol Nurs. 2013 Nov-Dec;30(6):301-10. doi: 10.1177/1043454213513838. Epub 2013 Dec 10.
To assess adolescent and young adult siblings' perception of social support prior to and following the loss of their brother or sister to cancer, 2 to 9 years earlier, and their anxiety at follow-up.
In 2009, 174 (73%) bereaved siblings (12-25 years) participated in a nationwide, long-term follow-up study in Sweden using an anonymous study-specific questionnaire. The Hospital Anxiety and Depression Scale was used to measure self-assessed anxiety.
Siblings had a higher risk of anxiety if they perceived their need for social support was unsatisfied during their brother or sisters' last month before death, relative risk (RR) = 3.6 (95% confidence interval [CI] = 1.8-7.3); time after death, RR = 2.9 (95% CI = 1.5-5.6); and at follow-up, RR = 3.8 (95% CI = 2.0-7.2). Furthermore, a higher risk for anxiety was shown for siblings if they did not perceive that their parents and neighbors cared for them after their brother or sisters' death, RR = 2.7 (95% CI = 1.3-5.5), RR = 5.4 (95% CI = 1.3-21.9), respectively.
Bereaved siblings had a greater probability to report self-assessed anxiety if they perceived that their need for social support was not satisfied prior to and following death. Information from both nurses and other health care professionals to families about the impact of social support may contribute to lessen the siblings' risk of anxiety.
评估在两到九年前因癌症失去兄弟姐妹的青少年及青年同胞在丧亲之前和之后对社会支持的感知，以及他们在随访时的焦虑状况。
2009年，174名（73%）丧亲同胞（12 - 25岁）参与了瑞典一项全国性的长期随访研究，使用特定的匿名研究问卷。采用医院焦虑抑郁量表来测量自我评估的焦虑程度。
如果同胞们觉得在其兄弟姐妹去世前的最后一个月里他们对社会支持的需求未得到满足，那么他们出现焦虑的风险更高，相对风险（RR）= 3.6（95%置信区间[CI]= 1.8 - 7.3）；在死亡之后，RR = 2.9（95% CI = 1.5 - 5.6）；在随访时，RR = 3.8（95% CI = 2.0 - 7.2）。此外，如果同胞们觉得在其兄弟姐妹去世后父母和邻居没有关心他们，那么他们出现焦虑的风险也更高，RR分别为2.7（95% CI = 1.3 - 5.5）和5.4（95% CI = 1.3 - 21.9）。
如果丧亲同胞觉得他们在死亡前后对社会支持的需求未得到满足，那么他们更有可能报告自我评估的焦虑。护士和其他医护专业人员向家庭提供有关社会支持影响的信息，可能有助于降低同胞出现焦虑的风险。
