Hüsler S, Schmid H
Institut Soziale Arbeit und Gesundheit, Fachhochschule Nordwestschweiz, Hochschule für Soziale Arbeit, Olten, Schweiz.
Klin Monbl Augenheilkd. 2013 Dec;230(12):1251-6. doi: 10.1055/s-0033-1351029. Epub 2013 Dec 10.
Age-related macular degeneration (AMD) affects the quality of life of about 40,000 patients in Switzerland. The treatment of wet AMD with intravitreal injected anti-vascular endothelial growth factor (VEGF) can be a heavy burden for many patients. The aim of this study was to understand the quality of life of the patients and to seek ways to improve the treatment compliance.
Half-structured telephone interviews with 28 patients between 56 and 94 years of age were transcribed and analysed. In 21 patients, both eyes were concerned with AMD.
The quality of life of patients with AMD is reduced. Many activities of daily living are hindered. Dependence on others increases. Communication of the diagnosis is perceived as a shock. Most interviewees wish for more information about their specific situation. Auxiliary means and counselling possibilities are hardly known.
Wet AMD impacts on the quality of life of the patient. Treatment should therefore not be limited to the medical treatment of the ill eye. Triage to rehabilitation and counselling services should be included as important duties of the medical practitioners.
年龄相关性黄斑变性（AMD）影响着瑞士约40000名患者的生活质量。玻璃体内注射抗血管内皮生长因子（VEGF）治疗湿性AMD对许多患者来说可能是沉重负担。本研究旨在了解患者的生活质量并寻求提高治疗依从性的方法。
对28名年龄在56至94岁之间的患者进行半结构化电话访谈，并对访谈内容进行转录和分析。21名患者双眼均患有AMD。
AMD患者的生活质量下降。许多日常生活活动受到阻碍。对他人的依赖增加。诊断结果的告知被视为一种打击。大多数受访者希望获得更多关于其具体情况的信息。辅助手段和咨询途径几乎无人知晓。
湿性AMD会影响患者的生活质量。因此，治疗不应局限于患眼的药物治疗。分诊至康复和咨询服务应作为医生的重要职责。
