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爱尔兰共和国的后天性脑损伤服务:家庭与专业人员的经历和看法

Acquired brain injury services in the Republic of Ireland: experiences and perceptions of families and professionals.

作者信息

McDermott Garret L, McDonnell Anne Marie

机构信息

Redwood Neurobehavioural Unit, Stamullen , Co Meath , Ireland .

出版信息

Brain Inj. 2014;28(1):81-91. doi: 10.3109/02699052.2013.857790.

DOI:10.3109/02699052.2013.857790
PMID:24328803
Abstract

PRIMARY OBJECTIVE

This study aimed to highlight the experiences and perceptions of rehabilitation services among families of people with Acquired Brain Injury (ABI) and among professionals working in ABI rehabilitation services in Ireland.

RESEARCH DESIGN

A qualitative, exploratory study used focus groups to gather data. Data were analysed through a system of qualitative content analysis.

METHOD

Three focus groups were carried out involving families of people with ABI from different parts of Ireland and one focus group was carried out with professionals working in rehabilitation services. Participants in all groups responded to five broad semi-structured questions.

MAIN RESULTS

Analysis revealed five categories across the family focus groups and, separately, five categories within the professional group. Both groups highlighted that: there is a need to develop rehabilitation services in Ireland, building and expanding on current services; there is a need to make information and education related to brain injury more widely available and to ensure it is accessible for families; and there is a need to improve co-ordination and communication between services. A range of relationship issues were also highlighted.

CONCLUSIONS

Much remains to be done to improve the experiences and perceptions of brain injury rehabilitation services among families and professionals.

摘要

主要目标

本研究旨在突出爱尔兰后天性脑损伤(ABI)患者家庭以及ABI康复服务领域专业人士对康复服务的体验和看法。

研究设计

一项定性的探索性研究,采用焦点小组来收集数据。通过定性内容分析系统对数据进行分析。

方法

开展了三个焦点小组,参与者为来自爱尔兰不同地区的ABI患者家庭,还开展了一个与康复服务领域专业人士的焦点小组。所有小组的参与者都回答了五个宽泛的半结构化问题。

主要结果

分析在家庭焦点小组中揭示了五类问题,在专业人士小组中单独揭示了五类问题。两个小组都强调:爱尔兰有必要在现有服务的基础上建设并扩展康复服务;有必要更广泛地提供与脑损伤相关的信息和教育,并确保家庭能够获取这些信息;有必要改善服务之间的协调与沟通。还突出了一系列关系问题。

结论

在改善家庭和专业人士对脑损伤康复服务的体验和看法方面,仍有许多工作要做。

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