Sun J, Hilliard P E, Feldman B M, Zourikian N, Chen L, Blanchette V S, Luke K H, Poon M C
Hematology Department, Nanfang Hospital, Southern Medical University, Guangzhou, China.
Haemophilia. 2014 May;20(3):435-40. doi: 10.1111/hae.12330. Epub 2013 Dec 16.
To meet the rapidly expanding need for musculoskeletal (MSK) specialists [physiotherapists (PTs), physiatrists] in haemophilia care in China, a 4-day Train the Trainer workshop was conducted in July/August 2009 in Beijing. A key focus was to train the participants to administer the Hemophilia Joint Health Score (HJHS) version 2.1 for effectively evaluating the MSK health of boys <18 years of age with haemophilia. The aim of this study was to test the HJHS version 2.1 inter- and intra-rater reliability in a group of Chinese PTs and physiatrists with limited experience in haemophilia care. Each of the trained Chinese physiatrists and PTs examined eight boys 4-17 years old with moderate and severe haemophilia on day 1 and repeated the examination on the same patients the next day using the HJHS version 2.1. The boys had a wide range of target joint involvement and arthropathy. The HJHS score sheet, work sheets and manual had been translated into simple Chinese prior to the study. The interrater (ICC 0.90) and intra-rater (ICC 0.91) reliability was excellent. The internal consistency of the HJHS items was also excellent with Cronbach's alpha of 0.86. With basic training in the administration of the HJHS version 2.1, the tool was reliably administered by Chinese PTs and physiatrists with limited haemophilic experience.
为满足中国血友病护理领域对肌肉骨骼（MSK）专家[物理治疗师（PT）、物理医学与康复医师]迅速增长的需求，2009年7月/8月在北京举办了一场为期4天的培训师培训工作坊。一个关键重点是培训参与者使用血友病关节健康评分（HJHS）2.1版，以有效评估18岁以下血友病男孩的MSK健康状况。本研究的目的是在一组血友病护理经验有限的中国PT和物理医学与康复医师中测试HJHS 2.1版的评分者间和评分者内信度。每位接受培训的中国物理医学与康复医师和PT在第1天对8名4 - 17岁患有中度和重度血友病的男孩进行检查，并在第二天使用HJHS 2.1版对同一批患者重复检查。这些男孩有广泛的目标关节受累和关节病情况。在研究前，HJHS评分表、工作表和手册已被翻译成简单中文。评分者间（组内相关系数ICC 0.90）和评分者内（ICC 0.91）信度极佳。HJHS各项的内部一致性也极佳，克朗巴哈系数为0.86。通过对HJHS 2.1版管理的基础培训，该工具能够被血友病经验有限的中国PT和物理医学与康复医师可靠地使用。
