Lee Suzanne M, Roen Katrina, Thornton Amanda
Ashton, Leigh and Wigan Memory Service, 5 Boroughs Partnership NHS Foundation Trust, UK.
Dementia (London). 2014 May;13(3):289-305. doi: 10.1177/1471301213497080. Epub 2013 Aug 5.
Research on the experience of receiving and living with a diagnosis of dementia is sparse. Existing studies have focused on the initial reactions to the diagnosis rather than longer term adjustment and coping. The current study uses interpretative phenomenological analysis to explore personal experiences of receiving a diagnosis and to investigate aspects of the experience of adjusting and adapting to dementia. This is a cross-sectional study drawing on semi-structured interviews with 10 participants who had a diagnosis of mild Alzheimer's disease. The findings illustrated the importance, to people with Alzheimer's disease, of understanding and making sense of the diagnosis to help them deal with issues of loss and to make positive adjustments to their lives through employing specific coping strategies. The findings also appeared to challenge misconceptions held by some professionals in relation to possible negative effects of disclosing a diagnosis of dementia.
关于接受痴呆症诊断及与之共处的经历的研究很少。现有研究集中在对诊断的最初反应，而非长期的调整和应对。本研究采用解释现象学分析方法，以探索接受诊断的个人经历，并调查适应痴呆症过程中经历的各个方面。这是一项横断面研究，基于对10名被诊断为轻度阿尔茨海默病患者的半结构化访谈。研究结果表明，对于阿尔茨海默病患者而言，理解并弄懂诊断结果对于帮助他们应对失落问题以及通过采用特定应对策略对生活做出积极调整非常重要。研究结果似乎也对一些专业人士关于披露痴呆症诊断可能产生负面影响的误解提出了挑战。
