Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.
Lovisenberg Diaconal University College, Oslo, Norway.
Dement Geriatr Cogn Disord. 2020;49(5):435-455. doi: 10.1159/000511225. Epub 2020 Nov 11.
For people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia.
This article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis.
Four categories were revealed: (1) rooted in the past - "I am the same as before"; (2) focussing on the present - "Nobody has tomorrow"; (3) thinking about the future - "What is going to happen to me?"; and (4) changes in the experience of self over time - "I used to…." The latent overall meaning was expressed as "being engaged with the dimensions of time."
DISCUSSION/CONCLUSION: The experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time.
对于患有痴呆症的人来说，了解生活时间很重要，因为这种疾病会影响记忆力、时间感知和预期寿命。本研究的目的是定位、解释和综合痴呆症患者的生活时间体验。
本文介绍了一种定性系统的元综合。范马南的生活世界理论为研究提供了背景。使用定性研究的关键评估技能计划标准来评估研究。综述中包括了 61 项基于对痴呆症患者访谈的定性研究。分析遵循解释性综合的原则。
揭示了四个类别：（1）根植于过去 - “我和以前一样”；（2）专注于现在 - “没有人有明天”；（3）思考未来 - “我会怎样？”；以及（4）随着时间的推移自我体验的变化 - “我曾经……”。潜在的总体意义表达为“参与时间的维度”。
讨论/结论：生活时间的体验是一种积极而重要的体验，使人们能够应对痴呆症的旅程。未来涉及痴呆症患者的工作应该将生活时间的体验置于重要位置。
