Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands.
Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Limburg Brain Injury Center, Maastricht University, Maastricht, The Netherlands.
J Alzheimers Dis. 2021;79(3):1157-1170. doi: 10.3233/JAD-201128.
Neuropsychological feedback is an important part of the neuropsychological assessment process. However, patients have difficulties remembering this information.
The aim of this study was to develop a web-based visual tool to improve the understanding of neuropsychological results, information retention, and psychologist-patient communication.
The visual tool was developed and optimized using an iterative three-phase stepwise approach to determine its usability, technology acceptance, and feasibility in a memory clinic population. Feedback from different user perspectives (patients, family members, and psychologists) was obtained in each phase using a multimethod approach (e.g. a multidisciplinary brainstorm session, think-aloud sessions, focus groups). The prototype was subsequently tested in a pilot study.
The first phases offered insights that led to optimization of the prototype. On a scale ranging from 0 to 100, psychologists evaluated the usability as high [88.1±7.6,70-87]. During the pilot study, both patients and significant others gave positive feedback, but information retention in patients remained low. All participants thought the benefits of the visual tool included seeing cognitive strengths and weaknesses with a translation to daily life all at one glance and receiving feedback on paper to take home. Important barriers were mentioned by psychologists, such as a limited set of tests included and no integration with hospital systems.
Overall, patients, family members, and psychologists reported that a visual display of the cognitive profile with insights into daily life had added value to clinical practice. Feedback from the pilot study was adopted in the tool for future implementation purposes.
神经心理学反馈是神经心理学评估过程的重要组成部分。然而，患者在记忆这些信息方面存在困难。
本研究旨在开发一种基于网络的可视化工具，以提高对神经心理学结果、信息保留和医患沟通的理解。
使用迭代式三步法逐步开发和优化可视化工具，以确定其在记忆诊所人群中的可用性、技术接受度和可行性。在每个阶段，从不同的用户角度（患者、家属和心理学家）使用多种方法（如多学科头脑风暴会议、思考 aloud 会议、焦点小组）获取反馈。原型随后在试点研究中进行了测试。
前两个阶段提供了见解，从而优化了原型。心理学家对可用性的评估得分为 88.1±7.6（70-87），评分范围为 0 至 100。在试点研究中，患者和重要他人都给予了积极的反馈，但患者的信息保留率仍然较低。所有参与者都认为该可视化工具的优点包括一眼就能看到认知的优势和劣势，并将其转化为日常生活中的情况，以及可以在纸质版上获得反馈并带回家。心理学家提到了一些重要的障碍，例如测试的范围有限，以及无法与医院系统集成。
总体而言，患者、家属和心理学家都认为，将认知概况以可视化的方式呈现并深入了解日常生活情况对临床实践具有附加价值。试点研究的反馈已被纳入工具，用于未来的实施目的。
