Costa Eliane Aparecida de Oliveira, Dupas Giselle, Sousa Etelvaldo Francisco Rego, Wernet Monika
Programa de Pós-Graduação em Enfermagem da Escola de Enfermagem da Universidade de São Paulo, Sao Paulo, SP, Brasil.
Departamento de Enfermagem da Universidade Federal de São Carlos, São Carlos, SP, Brasil.
Rev Gaucha Enferm. 2013 Sep;34(3):72-8. doi: 10.1590/s1983-14472013000300009.
The purpose of this study was to learn the perception that families of children with a chronic disease make of their relationships with the Family Health Unit (FHU). This qualitative study was performed using symbolic interactionism as the theoretical ground and narrative inquiry as the method. Data were collected through semi-structured interviews with seven families of children with chronic disease, enrolled in the FHU of a region with high social vulnerability, in Sdo Paulo state, Brazil. Results showed that the family's relationship with the FHU is influenced by elements from their experience and trajectory, and that their experience as a family of a child with a chronic disease is strongly marked by their relationship with the health care services. This has great influence on the responses of the family, thus requiring a systematic and committed engagement of the health system in relieving their suffering, beyond merely treating the disease.
本研究的目的是了解慢性病患儿家庭对其与家庭健康单位（FHU）关系的认知。这项定性研究以象征互动主义为理论基础，采用叙事探究法。通过对七个慢性病患儿家庭进行半结构式访谈收集数据，这些家庭来自巴西圣保罗州一个社会脆弱性高的地区的家庭健康单位。结果表明，家庭与家庭健康单位的关系受其经历和轨迹因素的影响，作为慢性病患儿家庭的经历因其与医疗服务的关系而有显著特征。这对家庭的反应有很大影响，因此除了治疗疾病外，卫生系统需要系统且坚定地致力于减轻他们的痛苦。
