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家庭对儿童慢性病诊断的意义赋予。

Meanings assigned by families about children's chronic disease diagnosis.

机构信息

Universidade Federal do Rio Grande. Rio Grande, Rio Grande do Sul, Brazil.

出版信息

Rev Bras Enferm. 2020 Mar 30;73(2):e20180742. doi: 10.1590/0034-7167-2018-0742. eCollection 2020.

Abstract

OBJECTIVES

to understand the meanings assigned by family caregivers about children's chronic disease diagnosis.

METHODS

qualitative study, which used as theoretical framework the Symbolic Interactionism, and methodological, the Grounded Theory. It was held in a pediatric unit in Southern Brazil, in 2016, through interviews submitted to open and axial analysis, with the participation of 20 family caregivers of hospitalized children.

RESULTS

relatives, interacting with the nursing/health staff, perceive children's disease at birth. They are diagnosed with chronic disease by the physician and deny it. Subsequently, they accept and seek information on care.

CONCLUSIONS

the results pointed out the stages that relatives experience by assigning meanings to about children's chronic disease diagnosis. These meanings provide subsidies for nurses' actions, which need to be aware of children's and family's needs in order to offer comprehensive and humanized care.

摘要

目的

了解照顾者对儿童慢性病诊断的意义赋予。

方法

定性研究,以符号互动论为理论框架,以扎根理论为方法论。于 2016 年在巴西南部的一家儿科病房进行,通过访谈进行开放式和轴向分析,参与者为 20 名住院儿童的家属。

结果

护理/卫生人员与家属互动,在孩子出生时就了解了孩子的疾病。医生诊断为慢性病,他们否认这一诊断。随后,他们接受并寻求有关护理的信息。

结论

结果指出了照顾者在为儿童慢性病诊断赋予意义时所经历的阶段。这些意义为护士的行动提供了依据,护士需要了解儿童和家庭的需求,以便提供全面和人性化的护理。

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