Béranger A, Boize P, Viallard M-L
Laboratoire d'éthique médicale et de médecine légale, hôpitaux de Paris, université Paris-Descartes, 45, rue des Saints-Pères, 75006 Paris, France.
Réanimation néonatale, centre hospitalier René-Dubos, 6, avenue de l'Île-de-France, BP 79, 95303 Cergy-Pontoise cedex, France.
Arch Pediatr. 2014 Feb;21(2):170-6. doi: 10.1016/j.arcped.2013.11.006. Epub 2013 Dec 27.
Prematurity is one of the etiologies for severe neurological complications. Decisions to withdraw therapeutics, including artificial nutrition and hydration (ANH), are sometimes discussed. But can one withdraw ANH if the patient is a child suffering from severe neurological conditions, based on his best interests? The aim of this study was to further the understanding of the complexity of the withdrawal of ANH and its implementation in the neonatal intensive care unit (NICU).
This qualitative preliminary study based on a questionnaire was conducted on the staff in the NICU of the Pontoise medical center (France) in February 2012. The results were compared with the current knowledge on this issue and sociological data.
Ten of the hospital staff members responded to the questionnaire: 60% considered ANH as a treatment, but the status of ANH (i.e., treatment or care) remained undefined for several respondents. Comparison with the withdrawal of mechanical ventilation or adult practices seemed to be inadequate. The staff had little experience in the domain and therefore few certainties on practices. Half of the respondents indicated that terminal sedation needed to be used. For the other half, it depended on the patient's pain. Timing was also an important notion given that the newborn is a being developing and evolving each in its own way.
The withdrawal of ANH remains controversial in the NICU. Humanity, culture, and the relationship to others are ever present in the decision-making process, creating a moral opposition above and beyond ethical reflection.
早产是严重神经并发症的病因之一。有时会讨论停止包括人工营养和水分补充(ANH)在内的治疗措施的决定。但是,如果患者是患有严重神经疾病的儿童,基于其最大利益,是否可以停止ANH呢?本研究的目的是进一步了解停止ANH的复杂性及其在新生儿重症监护病房(NICU)中的实施情况。
2012年2月,对法国蓬图瓦兹医疗中心NICU的工作人员进行了基于问卷调查的定性初步研究。将结果与关于该问题的现有知识和社会学数据进行了比较。
10名医院工作人员回复了问卷:60%的人将ANH视为一种治疗方法,但对于几位受访者来说,ANH的地位(即治疗或护理)仍不明确。与停止机械通气或成人做法的比较似乎并不充分。工作人员在该领域经验不足,因此对做法缺乏把握。一半的受访者表示需要使用临终镇静。对于另一半人来说,这取决于患者的疼痛情况。鉴于新生儿是以各自独特的方式发育和成长的个体,时机也是一个重要概念。
在NICU中,停止ANH仍然存在争议。人性、文化以及与他人的关系在决策过程中始终存在,在伦理思考之外形成了一种道德上的对立。