Cuttini Marina, Casotto Veronica, Orzalesi Marcello
Unit of Epidemiology, Ospedale Pediatrico Bambino Gesù, Scientific Institute (IRCCS), Rome, Italy.
Acta Paediatr Suppl. 2006 Jul;95(452):42-6. doi: 10.1111/j.1651-2227.2006.tb02415.x.
An international project (EURONIC) was carried out to explore the end-of-life decision-making process in a large, representative sample of neonatal intensive care units (NICUs) in eight western European countries: France, Germany, Great Britain, Italy, Luxembourg, the Netherlands, Spain and Sweden. Structured questionnaires were used to record data on NICU organization and policies, and to survey staff views and practices regarding ethical decision-making. One hundred and twenty-two NICUs were recruited by census or random sampling (response rate 86%); 1235 physicians and 3115 nurses completed the staff questionnaire (response rates 89 and 85%, respectively). This paper focuses on the physicians' answers. In all countries but Italy, most physicians reported having been involved at least once in setting limits to intensive care because of a baby's incurable condition and/or poor neurological prognosis. Adopted strategies varied between countries. Practices such as the continuation of current treatment without intensifying it and the withholding of emergency manoeuvres appeared widespread. In contrast, the frequency of doctors reporting withdrawal of mechanical ventilation was highest in the Netherlands (93%), Sweden (91%) and the Great Britain (88%), intermediate in France and Germany, and lowest in Spain and Italy (34 and 21%, respectively).
Ethically problematic clinical cases are approached differently in the various countries. The findings of this study may provide an opportunity for physicians to review their practices critically, in light of how other colleagues proceed, and foster an open discussion about these difficult issues.
开展了一项国际项目(EURONIC),以在西欧八个国家(法国、德国、英国、意大利、卢森堡、荷兰、西班牙和瑞典)具有代表性的大量新生儿重症监护病房(NICU)样本中,探索临终决策过程。使用结构化问卷记录有关NICU组织和政策的数据,并调查工作人员关于伦理决策的观点和做法。通过普查或随机抽样招募了122个NICU(回复率86%);1235名医生和3115名护士完成了工作人员问卷(回复率分别为89%和85%)。本文重点关注医生的回答。除意大利外,在所有国家,大多数医生报告称,由于婴儿患有不治之症和/或神经预后不良,他们至少参与过一次设定重症监护限制的工作。各国采取的策略各不相同。诸如在不加强治疗的情况下继续当前治疗以及不采取紧急措施等做法似乎很普遍。相比之下,报告撤机的医生比例在荷兰最高(93%)、瑞典(91%)和英国(88%),在法国和德国处于中等水平,在西班牙和意大利最低(分别为34%和21%)。
各国处理存在伦理问题的临床病例的方式不同。这项研究的结果可能为医生提供一个机会,根据其他同事的做法批判性地审视自己的做法,并促进就这些难题展开公开讨论。