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对癌症患者的社会支持——特定问题

Social support for cancer-Selected problems.

作者信息

Bernad Dorota, Zysnarska Monika, Adamek Renata

机构信息

Greater Poland Cancer Centre, ul. Garbary 15, Poznań, Poland.

Institute of Public Health, Faculty of Social Medicine, Poznań University of Medical Sciences, ul. Dąbrowskiego 79, Poznań, Poland.

出版信息

Rep Pract Oncol Radiother. 2010 Apr 9;15(2):47-50. doi: 10.1016/j.rpor.2010.02.002. eCollection 2010.

Abstract

Cancer creates a difficult situation connected with an extreme psychological burden for the patient, with the main symptom being the high level of stress resulting from the necessity to change the hierarchy of values and life goals, the prospect of physical pain and dependence on others. The main goal of the research was to determine the scope of social support recognized by patients with cancer. Determination of the phases of disease predominantly burdened with stress as well as methods of stress reduction was the indirect goal of the research. The research was conducted in the Wielkopolska province in 2008, and included a target group of patients with head or neck cancer treated by an oncological clinic. The researchers used a diagnostic poll as the method, and a questionnaire as the instrument. THE RESULTS SHOWED THAT PATIENTS EXPECT AND ARE GRANTED SUPPORT OF TWO BASIC TYPES: emotional: allowing them to conquer their own internal tension and negative feelings, to express their fear, anxiety and sorrow, and to give rise to hope; and practical: aiming at the exchange and provision of information and advice that bring about better understanding of their condition, life situation and problems. The latter type of support results in the collection of feedback on the effectiveness of countermeasures taken by the supported patients, and exchange of information about certain procedures and the form of modelling efficient countermeasures.

摘要

癌症给患者带来了艰难的处境,伴随着极大的心理负担,主要症状是由于需要改变价值等级和生活目标、身体疼痛的前景以及对他人的依赖而产生的高度压力。该研究的主要目的是确定癌症患者所认可的社会支持范围。确定疾病中主要承受压力的阶段以及减轻压力的方法是该研究的间接目的。该研究于2008年在大波兰省进行,目标群体为一家肿瘤诊所治疗的头颈癌患者。研究人员采用诊断性民意调查作为方法,问卷作为工具。结果显示,患者期望并获得两种基本类型的支持:情感支持:使他们能够克服自身的内心紧张和负面情绪,表达恐惧、焦虑和悲伤,并唤起希望;实际支持:旨在交流和提供信息与建议,从而更好地理解自身状况、生活境遇和问题。后一种支持会收集关于受助患者所采取应对措施有效性的反馈,并交流有关某些程序以及制定有效应对措施形式的信息。

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本文引用的文献

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