Markward Martha J, Benner Kalea, Freese Rebekah
School of Social Work, University of Missouri.
Fam Syst Health. 2013 Dec;31(4):406-13. doi: 10.1037/a0034440.
This review focuses on parental decision making regarding the care and treatment of children with cancer. Articles were abstracted from the following sources: Ovid Databases (Cochrane Database of Systematic Reviews, Database of Abstracts of Review of Effects, Medline, and Social Work Abstracts) and EBSCOhost (Academic Search Premier and Academic Search Complete) using smart text. The criteria for the search were publications between 2005 and 2012 and publication in peer-review journals. The descriptors used were parents of children with cancer, decision making, decisions about childhood cancer, and parents. The search yielded 59 references, but after duplicates, as well as dated and irrelevant articles were removed, 17 articles were identified that focused specifically on the decisions parents make regarding the care and treatment of children with cancer. Coders agreed that the child's quality of life/well-being, parental hope/expectations, support/supportive care, communication, and information were important themes in considering the decisions parents made regarding the care and treatment of children with cancer. These themes provide insight into the needs of parents in making decisions about the care and treatment of children with cancer.
本综述聚焦于父母在癌症患儿护理与治疗方面的决策。文章从以下来源提取：使用智能文本检索Ovid数据库（Cochrane系统评价数据库、效果评价摘要数据库、医学索引数据库和社会工作摘要数据库）以及EBSCOhost（学术搜索高级版和学术搜索完整版）。检索标准为2005年至2012年间发表且发表于同行评审期刊。使用的描述词为癌症患儿的父母、决策制定、关于儿童癌症的决策以及父母。检索得到59篇参考文献，但在去除重复文献以及陈旧和不相关的文章后，确定了17篇专门关注父母在癌症患儿护理与治疗方面所做决策的文章。编码人员一致认为，儿童的生活质量/幸福感、父母的希望/期望、支持/支持性护理、沟通以及信息，是考虑父母在癌症患儿护理与治疗方面所做决策时的重要主题。这些主题为洞察父母在做出癌症患儿护理与治疗决策时的需求提供了依据。
