Lewandowska Anna
Institute of Healthcare, State School of Technology and Economics, 37-500 Jaroslaw, Poland.
Children (Basel). 2021 Jul 13;8(7):592. doi: 10.3390/children8070592.
Background-A child's cancer affects their entire family and is a source of chronic stress for a sick child, as well as for their parents and siblings. It deprives them of the feeling of security; introduces uncertainty, fear and anxiety; and destabilises their life. It mobilises the family since they have to reconcile the treatment and frequent appointments at the hospital with the hardships of everyday life. The emotional burden they have to deal with is enormous. Recognition of the needs of such a family allows for the implementation of support, psychosocial care and psychoeducation, as well as the provision of reliable information. Patients and Methods-A population survey was conducted between 2015 and 2020. Caregivers of children diagnosed with cancer were invited to participate in the study to assess their problems and needs. Results-All respondents in their legal status were parents of children with cancer. The study included 800 people, where women accounted for 85% and men accounted for 15%. The mean age of the mother was 38.09, SD = 7.25, and the mean age of the father was 41.11, SD = 7.03. The occurrence of problems negatively correlated with both the age of the parents ( < 0.0001) and the level of education ( < 0.0001). Parents who admitted having financial problems more often reported problems of a different kind; moreover, financial problems were more often reported by parents of children who were ill for a longer time ( = 0.01). Conclusions-Parents of children suffering from cancer reported numerous psychological, social and somatic problems. The identification of problems through screening should translate into specific interventions, thus creating support for the families of children with cancer. Promoting coping with difficult emotions and the ability to solve problems when a child is ill has a positive effect on the functioning of the family.
背景——儿童癌症会影响其整个家庭,是患病儿童及其父母和兄弟姐妹长期压力的来源。它剥夺了他们的安全感;带来了不确定性、恐惧和焦虑;并扰乱了他们的生活。这使家庭行动起来,因为他们必须在医院的治疗和频繁预约与日常生活的艰辛之间进行协调。他们必须应对的情感负担极其沉重。认识到这样一个家庭的需求有助于实施支持、心理社会护理和心理教育,以及提供可靠信息。
患者与方法——2015年至2020年进行了一项人口调查。邀请被诊断患有癌症儿童的照顾者参与研究,以评估他们的问题和需求。
结果——所有受访者在法律身份上均为癌症患儿的父母。该研究包括800人,其中女性占85%,男性占15%。母亲的平均年龄为38.09岁,标准差为7.25,父亲的平均年龄为41.11岁,标准差为7.03。问题的出现与父母的年龄(<0.0001)和教育水平(<0.0001)均呈负相关。承认有经济问题的父母更常报告其他类型的问题;此外,孩子患病时间较长的父母更常报告经济问题(=0.01)。
结论——癌症患儿的父母报告了许多心理、社会和躯体问题。通过筛查识别问题应转化为具体干预措施,从而为癌症患儿家庭提供支持。当孩子生病时,促进应对困难情绪和解决问题的能力对家庭功能有积极影响。