Curran Eileen A, Seib Katherine G, Wells Katelyn, Hannan Claire, Bednarczyk Robert A, Hinman Alan R, Omer Saad B
Emory University Preparedness and Emergency Response Research Center, Atlanta, Georgia (Mss Curran and Seib and Drs Bednarczyk, Hinman, and Omer); Hubert Department of Global Health, Rollins School of Public Health, Emory University, Atlanta, Georgia (Ms Seib and Drs Hinman and Omer); Association of Immunization Managers, Rockville, Maryland (Dr Wells and Ms Hannan); Center for Health Research-Southeast, Kaiser Permanente, Atlanta, Georgia (Drs Bednarczyk and Omer); and Task Force for Global Health, Decatur, Georgia (Dr Hinman).
J Public Health Manag Pract. 2014 Nov-Dec;20(6):591-7. doi: 10.1097/PHH.0000000000000023.
To determine and characterize practices regarding data sharing and usage (particularly for research) in immunization information systems (IISs), as well as barriers to using such data for research.
We surveyed immunization program managers (IPMs) associated with all 64 Centers for Disease Control and Prevention grantee immunization programs (IPs) between July and September 2012.
More than 95% of IPMs (61/64) responded. The top 2 barriers reported by IPMs to using IIS data for research were insufficient time and too few employees, irrespective of whether or not the jurisdiction reported using data for research purposes. Those IPMs who agreed with the statement "Research is part of the mission of an immunization program" were more likely to report using data for research (P = .045). Among those who responded, the most common kind of IIS research conducted involved determinants of vaccination coverage (n = 24/26; 92%). A greater percentage of IPMs in jurisdictions that reported using IIS data for research reported having data-sharing agreements in place. Those IPs that have used IIS data for research were more likely to report online IIS provider enrollment, integration with insurance company records, and integration with hospital records. Alternatively, IPs that did not report using IIS data for research were more likely to have IISs with modules addressing topics such as adverse event reporting, smallpox, and first-responder vaccination.
Staff size and time were the 2 most cited barriers to conducting research with IIS data. Therefore, focus should also be placed on providing IPs with the resources needed to conduct such research.
确定并描述免疫信息系统（IIS）中数据共享与使用（尤其是用于研究）的相关做法，以及使用此类数据进行研究的障碍。
我们在2012年7月至9月期间对与疾病控制和预防中心所有64个受资助免疫项目（IP）相关的免疫项目管理人员（IPM）进行了调查。
超过95%的IPM（61/64）做出了回应。IPM报告的使用IIS数据进行研究的前两大障碍是时间不足和员工太少，无论该辖区是否报告将数据用于研究目的。那些同意“研究是免疫项目使命的一部分”这一说法的IPM更有可能报告将数据用于研究（P = 0.045）。在做出回应的人中，进行的最常见的IIS研究类型涉及疫苗接种覆盖率的决定因素（n = 24/26；92%）。报告将IIS数据用于研究的辖区中，有更高比例的IPM报告有数据共享协议。那些将IIS数据用于研究的IP更有可能报告在线IIS提供者注册、与保险公司记录整合以及与医院记录整合。相反，未报告将IIS数据用于研究的IP更有可能拥有涉及不良事件报告、天花和急救人员疫苗接种等主题模块的IIS。
人员规模和时间是使用IIS数据进行研究最常被提及的两大障碍。因此，还应注重为免疫项目提供进行此类研究所需的资源。
