Murphy Kathy, Jordan Fionnuala, Hunter Andrew, Cooney Adeline, Casey Dympna
School of Nursing and Midwifery, Aras Moyola, NUI, Galway, Ireland
School of Nursing and Midwifery, NUI, Galway, Ireland.
Dementia (London). 2015 Nov;14(6):800-24. doi: 10.1177/1471301213512489. Epub 2014 Jan 8.
It is essential to understand the experience of living with dementia from the perspective of the person with dementia so that services can be appropriately constructed. This review paper, drawing on prior work, identifies key strategies for the meaningful inclusion of persons with dementia within qualitative research studies, it examines the articulation of these strategies and shares how these strategies were operationalised within one national research study in Ireland. Strategies within the literature were categorised and then synthesized into a guide consisting of four main areas; gaining COnsent, maximizing Responses, Telling the story, and Ending on a high (CORTE). The CORTE guideline was used to as a tool for analysing relevant research reports. CORTE is a synthesized account of grouped strategies that could be used to maximize the meaningful involvement of persons with dementia and can also provide a guide for reporting the strategies used so that researchers can learn from each other.
从痴呆症患者的角度理解痴呆症患者的生活体验至关重要,这样才能适当地构建服务。这篇综述论文借鉴先前的研究成果,确定了在定性研究中让痴呆症患者有意义地参与的关键策略,它审视了这些策略的阐述,并分享了这些策略在爱尔兰一项全国性研究中的实施方式。文献中的策略被分类,然后综合成一个由四个主要领域组成的指南;获得同意(COnsent)、最大化回应(maximizing Responses)、讲述故事(Telling the story)和以积极的方式结束(Ending on a high,CORTE)。CORTE指南被用作分析相关研究报告的工具。CORTE是对分组策略的综合描述,可用于最大限度地让痴呆症患者有意义地参与,还可为报告所使用的策略提供指导,以便研究人员相互学习。