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倾听指南:说明一种未充分使用的以声音为中心的方法,以突出代表性不足的研究人群。

The Listening Guide: Illustrating an underused voice-centred methodology to foreground underrepresented research populations.

机构信息

Division of Geriatric Medicine and Palliative Care, Department of Medicine, New York University Grossman School of Medicine, New York, New York, USA.

Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.

出版信息

J Adv Nurs. 2024 Aug;80(8):3414-3424. doi: 10.1111/jan.16054. Epub 2024 Feb 28.

Abstract

AIM

To highlight the value of utilizing the Listening Guide methodology for nursing research and provide an exemplar applying this methodology to explore a novel concept in an underrepresented group-inner strength in persons newly diagnosed with mild cognitive impairment along with their care partners.

DESIGN

Methodology discussion paper.

METHODS

The exemplar study used the Listening Guide methods for data elicitation and analysis. Methods included adaptations for the study population and novice qualitative researchers.

RESULTS

The Listening Guide methodology with adaptations enabled the research team to centre the voices of persons living with mild cognitive impairment, highlight an abstract phenomenon and attend to the influences of the sociopolitical context. Further, this methodology helped address common challenges emerging qualitative researchers encounter, including understanding methods of application, engaging reflexively and immersing in the data.

CONCLUSION

The Listening Guide is a voice-centred qualitative methodology that is well suited to foreground the experiences of groups underrepresented in research and explore emerging phenomena.

IMPLICATIONS FOR NURSING

Nurses are central to striving for health equity. The Listening Guide methodology offers a valuable and accessible research tool to understand the experiences and needs of underrepresented groups and shape healthcare in response.

IMPACT

The Listening Guide methodology can be broadly applied to research with persons with mild cognitive impairment, and other underrepresented groups, to explore other phenomena beyond inner strength and move the science forward in representing the perspectives of groups underrepresented by research.

PATIENT OR PUBLIC CONTRIBUTION

Persons living with cognitive impairment and their care partners participated in study conceptualization, interview guide development, methods development and dissemination plans.

摘要

目的

强调利用倾听指南方法进行护理研究的价值,并提供一个范例,应用该方法探索认知障碍轻度患者及其照护者这一代表性不足群体中的新概念——内在力量。

设计

方法讨论论文。

方法

范例研究采用倾听指南方法进行数据收集和分析。方法包括针对研究人群和新手定性研究人员的适应性调整。

结果

倾听指南方法的适应性调整使研究团队能够关注认知障碍轻度患者的声音,突出抽象现象,并关注社会政治背景的影响。此外,这种方法有助于解决新手定性研究人员经常遇到的共同挑战,包括理解应用方法、进行反思和沉浸在数据中。

结论

倾听指南是一种以声音为中心的定性方法,非常适合突出研究中代表性不足群体的经验,并探索新出现的现象。

对护理的启示

护士是争取健康公平的核心力量。倾听指南方法为理解代表性不足群体的经验和需求提供了有价值且易于使用的研究工具,并为医疗保健做出回应。

影响

倾听指南方法可以广泛应用于认知障碍轻度患者及其他代表性不足群体的研究,以探索内在力量以外的其他现象,并推动科学研究更全面地代表研究中代表性不足的群体的观点。

患者或公众参与

认知障碍患者及其照护者参与了研究概念化、访谈指南制定、方法制定和传播计划。

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