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倾听指南:说明一种未充分使用的以声音为中心的方法,以突出代表性不足的研究人群。

The Listening Guide: Illustrating an underused voice-centred methodology to foreground underrepresented research populations.

机构信息

Division of Geriatric Medicine and Palliative Care, Department of Medicine, New York University Grossman School of Medicine, New York, New York, USA.

Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.

出版信息

J Adv Nurs. 2024 Aug;80(8):3414-3424. doi: 10.1111/jan.16054. Epub 2024 Feb 28.

DOI:10.1111/jan.16054
PMID:38415935
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11245374/
Abstract

AIM

To highlight the value of utilizing the Listening Guide methodology for nursing research and provide an exemplar applying this methodology to explore a novel concept in an underrepresented group-inner strength in persons newly diagnosed with mild cognitive impairment along with their care partners.

DESIGN

Methodology discussion paper.

METHODS

The exemplar study used the Listening Guide methods for data elicitation and analysis. Methods included adaptations for the study population and novice qualitative researchers.

RESULTS

The Listening Guide methodology with adaptations enabled the research team to centre the voices of persons living with mild cognitive impairment, highlight an abstract phenomenon and attend to the influences of the sociopolitical context. Further, this methodology helped address common challenges emerging qualitative researchers encounter, including understanding methods of application, engaging reflexively and immersing in the data.

CONCLUSION

The Listening Guide is a voice-centred qualitative methodology that is well suited to foreground the experiences of groups underrepresented in research and explore emerging phenomena.

IMPLICATIONS FOR NURSING

Nurses are central to striving for health equity. The Listening Guide methodology offers a valuable and accessible research tool to understand the experiences and needs of underrepresented groups and shape healthcare in response.

IMPACT

The Listening Guide methodology can be broadly applied to research with persons with mild cognitive impairment, and other underrepresented groups, to explore other phenomena beyond inner strength and move the science forward in representing the perspectives of groups underrepresented by research.

PATIENT OR PUBLIC CONTRIBUTION

Persons living with cognitive impairment and their care partners participated in study conceptualization, interview guide development, methods development and dissemination plans.

摘要

目的

强调利用倾听指南方法进行护理研究的价值,并提供一个范例,应用该方法探索认知障碍轻度患者及其照护者这一代表性不足群体中的新概念——内在力量。

设计

方法讨论论文。

方法

范例研究采用倾听指南方法进行数据收集和分析。方法包括针对研究人群和新手定性研究人员的适应性调整。

结果

倾听指南方法的适应性调整使研究团队能够关注认知障碍轻度患者的声音,突出抽象现象,并关注社会政治背景的影响。此外,这种方法有助于解决新手定性研究人员经常遇到的共同挑战,包括理解应用方法、进行反思和沉浸在数据中。

结论

倾听指南是一种以声音为中心的定性方法,非常适合突出研究中代表性不足群体的经验,并探索新出现的现象。

对护理的启示

护士是争取健康公平的核心力量。倾听指南方法为理解代表性不足群体的经验和需求提供了有价值且易于使用的研究工具,并为医疗保健做出回应。

影响

倾听指南方法可以广泛应用于认知障碍轻度患者及其他代表性不足群体的研究,以探索内在力量以外的其他现象,并推动科学研究更全面地代表研究中代表性不足的群体的观点。

患者或公众参与

认知障碍患者及其照护者参与了研究概念化、访谈指南制定、方法制定和传播计划。

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本文引用的文献

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The Future of Nursing 2020-2030: Charting a path to achieve health equity.《2020-2030年护理的未来:绘制实现健康公平的路径》
Nurs Outlook. 2022 Nov-Dec;70(6 Suppl 1):S1-S9. doi: 10.1016/j.outlook.2022.05.013.
2
Opportunities for Poetic Analysis in Qualitative Nursing Research.定性护理研究中的诗歌分析机会。
Nurs Res. 2022;71(4):322-327. doi: 10.1097/NNR.0000000000000580. Epub 2022 Jan 24.
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A radical imagination for nursing: Generative insurrection, creative resistance.激进的护理想象:生成性起义,创造性抵抗。
Nurs Philos. 2022 Jan;23(1):e12371. doi: 10.1111/nup.12371. Epub 2021 Oct 10.
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A dimensional analysis of inner strength in people ageing with serious illness.对重病老年人内在力量的维度分析。
Nurs Inq. 2020 Oct;27(4):e12353. doi: 10.1111/nin.12353. Epub 2020 May 11.
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A systematic review of the effects of character strengths-based intervention on the psychological well-being of patients suffering from chronic illnesses.基于特质优势的干预对慢性病患者心理幸福感影响的系统评价。
J Adv Nurs. 2020 Jul;76(7):1567-1580. doi: 10.1111/jan.14356. Epub 2020 Apr 7.
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Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes.在评估心理社会结果时重新审视阿尔茨海默病性痴呆的框架。
Alzheimers Dement (N Y). 2019 Aug 17;5:388-397. doi: 10.1016/j.trci.2019.02.008. eCollection 2019.
7
Inner Strength-State of the Science.内在力量——科学的状态
Can J Nurs Res. 2019 Mar;51(1):38-48. doi: 10.1177/0844562118790714. Epub 2018 Jul 27.
8
Positive psychological interventions for neurological disorders: A systematic review.积极心理干预对神经障碍的影响:系统综述。
Clin Neuropsychol. 2019 Apr;33(3):490-518. doi: 10.1080/13854046.2018.1489562. Epub 2018 Jun 24.
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Humanitarian nursing with Médecins Sans Frontières: Foregrounding the listening guide as a method for analysing oral history data.无国界医生组织的人道主义护理:将倾听指南作为分析口述历史数据的一种方法加以突出。
J Adv Nurs. 2018 Apr 6. doi: 10.1111/jan.13585.
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The Age-Friendly Health System Imperative.《老龄化友好型卫生系统的必要性》。
J Am Geriatr Soc. 2018 Jan;66(1):22-24. doi: 10.1111/jgs.15076. Epub 2017 Sep 6.