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疾病的经历所传授的东西。

What the experience of illness teaches.

作者信息

Taylor Carol

出版信息

Narrat Inq Bioeth. 2013 Spring;3(1):45-9. doi: 10.1353/nib.2013.0018.

DOI:10.1353/nib.2013.0018
PMID:24407004
Abstract

When invited to describe what the experience of illness taught them, a select group of bioethicists took eagerly to the task. This commentary culls three themes from their reflections: responsiveness to vulnerability, love as the proper motive for care, and reflective practice. U.S. bioethics was slow to appreciate the importance of recognizing and responding to human vulnerability. These essays describe its central importance for those suffering illness and make educating a more empathic and responsive generation of caregivers a priority. Descriptions of how family and friendship bonds with an ill person created a unique sense of their inherent dignity and needs clearly raises the question of whether or not love is a necessary motive for professional caregivers. Will our professional care always fall short if not motivated by genuine human love? Finally, each essay teaches anew the importance of the life lessons human experience can teach if we value reflection and seek to experience, understand and learn from our experience.

摘要

当被邀请描述疾病经历教会了他们什么时,一群精选的生物伦理学家欣然接受了这项任务。这篇评论从他们的思考中提炼出三个主题:对脆弱性的回应、爱是护理的恰当动机以及反思性实践。美国生物伦理学在认识和回应人类脆弱性的重要性方面进展缓慢。这些文章描述了它对患病者的核心重要性,并将教育一代更具同理心和反应能力的护理人员作为优先事项。对与患病者的家庭和友谊纽带如何创造出对其固有尊严和需求的独特认识的描述,显然提出了爱是否是专业护理人员的必要动机这一问题。如果没有真正的人类之爱作为动机,我们的专业护理是否总会有所欠缺?最后,如果我们重视反思并试图从自身经历中去体验、理解和学习,每篇文章都再次表明了人类经历所蕴含的人生教益的重要性。

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