Digestive Diseases Clinical Academic Unit, Blizard Institute of Cell and Molecular Science, Barts and the London School of Medicine and Dentistry, United Kingdom.
J Crohns Colitis. 2011 Dec;5(6):509-19. doi: 10.1016/j.crohns.2011.03.015. Epub 2011 May 4.
Children and adolescents with inflammatory bowel disease (IBD) tend to have more extensive and severe disease than adults. IBD presenting in childhood interferes with growth, education and employment as well as psychosocial and sexual development, frequently delaying adolescent developmental milestones. Transition, in the context of healthcare, is the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions to adult-orientated healthcare systems. Although no single model has been widely adopted and despite a paucity of data, recent guidelines from Europe and the USA propose the formation of specialist transition clinics for adolescent patients with IBD. In order to develop a successful transition service, the barriers that arise because of differences between paediatric and adult IBD services need to be identified. In this article, we review the concept of transitional care for adolescents with IBD, highlighting the important differences in not only, paediatric and adult IBD, but also paediatric and adult IBD services. We consider the consequences of failed transition, and describe the limited published data reporting different approaches to transition in IBD, before outlining our own approach.
儿童和青少年炎症性肠病(IBD)的发病往往比成年人更广泛和严重。儿童时期的 IBD 会干扰生长、教育和就业以及心理社会和性发育,经常延迟青少年发育的里程碑。在医疗保健领域,过渡是指患有慢性身体和医疗状况的青少年和年轻人向成人导向的医疗保健系统的有目的、有计划的转移。尽管没有一种单一的模式被广泛采用,而且数据也很少,但来自欧洲和美国的最近指南建议为患有 IBD 的青少年患者设立专门的过渡诊所。为了开发成功的过渡服务,需要确定由于儿科和成人 IBD 服务之间的差异而产生的障碍。在本文中,我们回顾了青少年 IBD 过渡护理的概念,重点介绍了不仅在儿科和成人 IBD 之间,而且在儿科和成人 IBD 服务之间存在的重要差异。我们考虑了过渡失败的后果,并描述了有限的已发表数据报告 IBD 过渡的不同方法,然后概述了我们自己的方法。