Intellect Dev Disabil. 2013 Dec;51(6):470-81. doi: 10.1352/1934-9556-51.6.470.
This paper presents findings from a qualitative research project on an English self-advocacy organization. In light of recent political and economic developments that have threatened the sustainability of a number of self-advocacy groups for people with intellectual disability, I seek to explore how one particular organization managed to survive and grow. In particular, the paper explores themes of management, leadership, and user control, linking these to external perceptions about self-advocacy organizations. The organization in my study developed an "interdependent" governance model based on key organizational roles for nondisabled advisors and self-advocates, which proved popular with external funders. Despite the organization's notable achievements, its success raises questions for the wider self-advocacy movement, notably how leadership capacity can be developed among self-advocates.
本文介绍了一项针对英语自助组织的定性研究项目的结果。鉴于最近的政治和经济发展威胁到一些智障人士自助组织的可持续性，我试图探讨一个特定组织如何设法生存和发展。特别是，本文探讨了管理、领导和用户控制等主题，并将这些主题与外界对自助组织的看法联系起来。我所研究的组织基于非残疾顾问和自助者的关键组织角色，制定了一种“相互依存”的治理模式，这种模式受到外部资助者的欢迎。尽管该组织取得了显著成就，但它的成功也为更广泛的自助运动提出了一些问题，特别是如何在自助者中培养领导力。
