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讲述自我倡导的历史:包容性研究面临的挑战。

Telling the history of self-advocacy: a challenge for inclusive research.

机构信息

Jan Walmsley Associates Ltd, Aylesbury, UK.

出版信息

J Appl Res Intellect Disabil. 2014 Jan;27(1):34-43. doi: 10.1111/jar.12086. Epub 2013 Dec 21.

DOI:10.1111/jar.12086
PMID:24376079
Abstract

BACKGROUND

This paper tells the story of Central England People First's (CEPF) History Project.

METHOD

This was an inclusive research project, owned and controlled by members of CEPF which sought to chart its 21-year history, 1990-2012.

RESULTS

It illustrates both the strengths of such a project and some of the challenges.

CONCLUSION

It concludes that using inclusive research methods enabled the story to be told, but that it was less successful in addressing questions about why the organization grew and prospered in the 1990s, only to struggle in its later years, and what this tells us about the conditions which enable self-advocacy to flourish. The paper was collaboratively written by the CEPF History Project team and an academic ally. Different fonts differentiate the contributions, although it is acknowledged that lots of the ideas were shared. This paper explores issues in telling the history of self advocacy using inclusive research methods. It explains how and why CEPF recorded its history, what we found out, and some of the questions we have had to think about: whose voices we hear what to include, what to leave out what parts of the research people with learning difficulties can do what self advocacy means to different people how to make use of research other people have done. It raises some new questions about directions for inclusive research. The Paper was written by the CEPF History team - Craig Hart, Ian Davies, Angela Still and Catherine O'Byrne - working with Jan Walmsley. We wanted to make it clear what were Jan Walmsley's ideas and what were our ideas. We have done this by writing our ideas in a different font. BUT lots of the ideas belong to all of us.

摘要

背景

本文讲述了英格兰中部第一人民组织(CEPF)历史项目的故事。

方法

这是一个包容性的研究项目,由 CEPF 的成员拥有和控制,旨在绘制其 21 年的历史,即 1990 年至 2012 年。

结果

它说明了这样一个项目的优势和一些挑战。

结论

它的结论是,使用包容性的研究方法能够讲述这个故事,但在解决为什么该组织在 20 世纪 90 年代发展壮大,而后来却举步维艰,以及这告诉我们哪些条件使自我倡导蓬勃发展的问题上,它的结论并不成功。本文由 CEPF 历史项目团队和一位学术盟友共同撰写。不同的字体区分了贡献者,尽管承认许多想法是共享的。本文探讨了使用包容性研究方法讲述自我倡导历史的问题。它解释了 CEPF 如何以及为何记录其历史、我们发现了什么以及我们不得不思考的一些问题:我们听到了哪些声音,包括什么,省略什么,学习困难的人可以做什么,不同的人对自我倡导的含义,如何利用其他人已经完成的研究。它提出了关于包容性研究方向的一些新问题。本文由 CEPF 历史团队——Craig Hart、Ian Davies、Angela Still 和 Catherine O'Byrne——与 Jan Walmsley 合作撰写。我们希望明确哪些是 Jan Walmsley 的想法,哪些是我们的想法。我们通过使用不同的字体来写我们的想法来做到这一点。但是,很多想法都属于我们所有人。

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