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“她的疾病是我们可以共同应对的课题”:为新诊断出的多发性硬化症开发一种以家庭为中心的协作干预模式

"Her illness is a project we can work on together": developing a collaborative family-centered intervention model for newly diagnosed multiple sclerosis.

作者信息

Rintell David, Melito Richard

机构信息

Partners Multiple Sclerosis Center, Brigham & Women's Hospital, Brookline, MA, USA (DR); and private practice, Newton, MA, USA (RM).

出版信息

Int J MS Care. 2013 Fall;15(3):130-6. doi: 10.7224/1537-2073.2012-022.

Abstract

This article presents a model for intervening with families that are addressing a new diagnosis of multiple sclerosis (MS) in one member. The model is collaborative, integrative, and family-centered. It involves both working with the family collaboratively and providing strategies to promote greater collaboration within the family. The model integrates elements of crisis intervention theory, psycho-education, and family-centered approaches. The model was developed with families addressing MS, and was piloted with three families. The intervention was found to improve family members' ability to collaborate with each other. Such increased collaboration may enhance the family's ability to manage long-term illness more effectively, help the family address the impact of the illness on all family members, and generally improve the family's quality of life.

摘要

本文提出了一个针对家庭成员中有一人被新诊断为多发性硬化症(MS)的家庭的干预模型。该模型具有协作性、综合性且以家庭为中心。它既包括与家庭合作开展工作,也包括提供促进家庭内部更多协作的策略。该模型整合了危机干预理论、心理教育和以家庭为中心的方法等要素。该模型是与应对MS的家庭共同开发的,并在三个家庭中进行了试点。结果发现,这种干预提高了家庭成员相互协作的能力。这种协作的增强可能会提高家庭更有效地管理长期疾病的能力,帮助家庭应对疾病对所有家庭成员的影响,并总体上改善家庭的生活质量。

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