Society for Epilepsy Research, Epilepsy Centre Bethel, Bielefeld, Germany; Department of Psychology, Bielefeld University, Bielefeld, Germany.
Section of Pediatric Epilepsy, Mara Hospital, Epilepsy Centre Bethel, Bielefeld, Germany.
Epilepsy Behav. 2014 Mar;32:21-6. doi: 10.1016/j.yebeh.2013.12.030. Epub 2014 Jan 23.
Epilepsy in a child or adolescent can have severe psychosocial impact on the whole family and burdens them, especially the parents. As the familial background is essential for the child's coping and the progression of the epilepsy, parental burden should be considered within a comprehensive treatment approach. This study validated the applicability of the Impact on Family Scale (IOFS), a well-established instrument that assesses the strains of families with chronically ill or disabled children, in parents of children with epilepsy. In a sample of 219 parents, the psychometric properties of the original IOFS version (33 items) and two short forms (15 and 11 items, respectively) were examined. Both short forms revealed good reliability (Cronbach's alpha, test-retest reliability), and construct validity was verified by correlations with epilepsy- and burden-related variables. However, exploratory and confirmatory factor analyses indicated superior characteristics of the short form with 11 items (IOFS-11). In conclusion, the IOFS-11 as well as the IOFS-15 proved to be practicable, reliable, and valid tools to assess the impact of childhood epilepsy on family life in research and clinical practice.
儿童或青少年癫痫会对整个家庭造成严重的心理社会影响，并给他们带来负担，尤其是父母。由于家庭背景对于孩子的应对和癫痫的发展至关重要，因此应在综合治疗方法中考虑父母的负担。本研究验证了广泛用于评估慢性病或残疾儿童家庭压力的Impact on Family Scale（IOFS）量表在癫痫儿童父母中的适用性。在 219 名父母的样本中，检验了原始 IOFS 版本（33 个项目）和两个简短版本（分别为 15 和 11 个项目）的心理测量特性。这两个简短版本均显示出良好的可靠性（Cronbach's alpha，重测信度），并且与癫痫和负担相关变量的相关性验证了其结构有效性。然而，探索性和验证性因子分析表明，具有 11 个项目的简短形式（IOFS-11）具有更好的特性。总之，IOFS-11 和 IOFS-15 被证明是在研究和临床实践中评估儿童癫痫对家庭生活影响的实用、可靠和有效的工具。
