a Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti , Università degli Studi di Milano , Milano , Italia.
b IRCCS Eugenio Medea - La Nostra Famiglia , Bosisio Parini , Italia.
Disabil Rehabil. 2019 May;41(10):1207-1216. doi: 10.1080/09638288.2017.1423519. Epub 2018 Jan 10.
Family caregivers are essential assets in the rehabilitation process, and their psychophysical health should represent a concern for healthcare services. This study aims to investigate the psychometric properties of the Adult Carer Quality of Life Questionnaire, Italian version, and its convergent-discriminant validity with measures of caring burden, resilience, health, and well-being.
Participants were 591 parents (89.2% females; aged 25-69) of children treated as outpatients in 14 centers of "Istituto Medea - La Nostra Famiglia", an Italian rehabilitation institution. They completed: Adult Carer Quality of Life Questionnaire, a 40-item scale assessing care-related challenges, resources, and benefits; Caregiver Burden Inventory; Resilience Scale for Adults; Satisfaction With Life Scale; Health Survey SF-36. The psychometric properties of the Adult Carer Quality of Life Questionnaire were investigated through exploratory and confirmatory factor analyses and reliability evaluation; correlation coefficients assessed convergent and discriminant validity with burden and well-being measures.
The original eight-factor structure of the Adult Carer Quality of Life Questionnaire showed good adequacy and internal consistency; convergent and discriminant validity with measures of burden, resilience, satisfaction, physical and mental health were satisfactory.
The Italian version of the Adult Carer Quality of Life Questionnaire is a reliable and valid instrument to assess caregivers' perceived challenges and resources. As a parsimonious and easily administrable tool, it can be used to evaluate caregivers' quality of life and related interventions. Implications for Rehabilitation Family caregivers are essential assets for the rehabilitation process, and their challenges and resources need to be considered by healthcare services. Information on caregivers' frailties to be reduced and strengths to be empowered allows to design interventions promoting well-being and social integration of people with disabilities and their families. The Adult Carer Quality of Life is a comprehensive measure of burden and well-being dimensions that can be easily administered to caregivers of any age.
家庭照顾者是康复过程中的重要资产，他们的身心健康应成为医疗保健服务关注的焦点。本研究旨在调查意大利版成人照顾者生活质量问卷的心理测量特性及其与照顾负担、韧性、健康和幸福感测量的聚合-区分效度。
参与者为 591 名父母（89.2%为女性；年龄 25-69 岁），他们的孩子在意大利康复机构“Istituto Medea-La Nostra Famiglia”的 14 个中心接受门诊治疗。他们完成了：成人照顾者生活质量问卷，一个包含 40 个项目的量表，评估与照顾相关的挑战、资源和益处；照顾者负担量表；成人韧性量表；生活满意度量表；健康调查 SF-36。通过探索性和验证性因素分析以及可靠性评估，研究了成人照顾者生活质量问卷的心理测量特性；相关系数评估了与负担和幸福感测量的聚合和区分效度。
成人照顾者生活质量问卷的原始八因素结构表现出良好的适宜性和内部一致性；与负担、韧性、满意度、身体和心理健康测量的聚合和区分效度令人满意。
意大利版成人照顾者生活质量问卷是一种可靠有效的工具，可用于评估照顾者对挑战和资源的感知。作为一种简洁且易于管理的工具，它可以用于评估照顾者的生活质量及其相关干预措施。
家庭照顾者是康复过程中的重要资产，医疗保健服务需要考虑他们的挑战和资源。了解照顾者的脆弱性和优势，以便减少脆弱性并赋予他们权力，可以设计促进残疾人和他们的家庭的幸福感和社会融合的干预措施。成人照顾者生活质量是一个全面的负担和幸福感维度的衡量标准，可轻松应用于任何年龄段的照顾者。
