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抚养有残疾和行为问题孩子的家庭的适应力。

Resilience in families raising children with disabilities and behavior problems.

作者信息

McConnell David, Savage Amber, Breitkreuz Rhonda

机构信息

Family and Disability Studies Initiative, Occupational Therapy, Rehabilitation Medicine, University of Alberta, 3-66 Corbett Hall, Edmonton, AB, Canada T6G 2G4.

Gender, Family, & Policy Studies, Human Ecology, University of Alberta, 330 Human Ecology, Edmonton, AB, Canada T6G 2N1.

出版信息

Res Dev Disabil. 2014 Apr;35(4):833-48. doi: 10.1016/j.ridd.2014.01.015. Epub 2014 Feb 1.

Abstract

The purpose of this study was to investigate the resilience displayed by families raising children with disabilities and behavior problems. The question is why do some families do well when others, exposed to similar stressors, struggle to keep their family life running? A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the Family Life Survey, which incorporated measures of child behavior problems, social-ecological resources and family-level 'outcomes'. Families raising children with disabilities and behavior problems 'do well' under conditions of high social support and low financial hardship. In contrast, families with low levels of social support and high levels of financial hardship typically struggle, even when the number or intensity of child behavior problems is low. The study findings are consistent with the view that 'resilience' has more to do with the availability and accessibility of culturally relevant resources than with intrinsic, individual or family factors. With respect to family-level outcomes, strengthening social relationships and ameliorating financial hardship may be more important than behavior modification.

摘要

本研究的目的是调查抚养残疾及有行为问题儿童的家庭所展现出的适应力。问题在于,为何有些家庭在面对类似压力源时能够应对自如,而其他家庭却难以维持正常的家庭生活?加拿大艾伯塔省538个抚养残疾儿童的家庭参与了此次分层(按儿童年龄组)随机抽样调查。参与者完成了家庭生活调查,该调查涵盖了儿童行为问题、社会生态资源以及家庭层面“结果”的测量指标。在社会支持度高且经济困难程度低的情况下,抚养残疾及有行为问题儿童的家庭“表现良好”。相比之下,社会支持度低且经济困难程度高的家庭通常举步维艰,即便儿童行为问题的数量或严重程度较低。研究结果与以下观点一致,即“适应力”更多地与文化相关资源的可获得性和可及性有关,而非与内在、个体或家庭因素有关。就家庭层面的结果而言,加强社会关系和缓解经济困难可能比行为矫正更为重要。

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