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类风湿关节炎患者的内疚和羞耻感。

Feelings of guilt and shame in patients with rheumatoid arthritis.

作者信息

Ten Klooster Peter M, Christenhusz Lieke C A, Taal Erik, Eggelmeijer Frank, van Woerkom Jan-Maarten, Rasker Johannes J

机构信息

Department of Psychology, Health & Technology, University of Twente, PO Box 217, 7500 AE, Enschede, The Netherlands.

出版信息

Clin Rheumatol. 2014 Jul;33(7):903-10. doi: 10.1007/s10067-014-2516-3. Epub 2014 Feb 9.

Abstract

This study aims to determine whether patients with rheumatoid arthritis (RA) experience more general feelings of guilt and shame than their peers without RA and to examine possible correlates of guilt and shame in RA. In a cross-sectional survey study, 85 out-patients with RA (77 % female; median disease duration, 11 years) and 59 peer controls completed the Experience of Shame Scale (ESS) and the Test of Self-Conscious Affect (TOSCA). Patients additionally completed measures of health status, self-efficacy, cognitive emotion regulation, and numerical rating scales for life satisfaction and happiness. Patients and peer controls were well matched for sociodemographic characteristics. No significant differences between patients and controls were found for guilt or different types of shame as measured with the TOSCA or ESS. In multivariate analyses, female patients reported more feelings of bodily shame and higher guilt proneness, while younger patients reported more character and bodily shame. Worse social functioning and more self-blaming coping strategies were the strongest independent correlates of shame. Shame proneness was only independently associated with more self-blame, whereas guilt proneness was only associated with female sex. None of the physical aspects of the disease, including pain and physical functioning, correlated with feelings of guilt and shame. Patients with longstanding RA do not experience more general feelings of shame or guilt than their peers without RA. Shame and guilt in RA is primarily associated with demographic and psychosocial characteristics and not with physical severity of the disease.

摘要

本研究旨在确定类风湿关节炎(RA)患者是否比无RA的同龄人有更多的内疚和羞耻感,并探讨RA中内疚和羞耻感的可能相关因素。在一项横断面调查研究中,85例RA门诊患者(77%为女性;疾病中位病程11年)和59例对照完成了羞耻体验量表(ESS)和自我意识情感测试(TOSCA)。患者还完成了健康状况、自我效能感、认知情绪调节以及生活满意度和幸福感数字评定量表的测量。患者和对照在社会人口学特征方面匹配良好。使用TOSCA或ESS测量时,患者和对照在内疚或不同类型的羞耻感方面未发现显著差异。在多变量分析中,女性患者报告有更多的身体羞耻感和更高的内疚倾向,而年轻患者报告有更多的性格和身体羞耻感。较差的社会功能和更多的自责应对策略是羞耻感最强的独立相关因素。羞耻倾向仅与更多的自责独立相关,而内疚倾向仅与女性性别相关。疾病的任何身体方面,包括疼痛和身体功能,均与内疚和羞耻感无关。患有长期RA的患者与无RA的同龄人相比,并没有更多的总体羞耻感或内疚感。RA中的羞耻感和内疚感主要与人口统计学和心理社会特征相关,而与疾病的身体严重程度无关。

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