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以他们自己的声音:叙事性残疾研究中的方法学考量

In their own voices: methodological considerations in narrative disability research.

作者信息

Smith-Chandler Natalie, Swart Estelle

机构信息

1Stellenbosch University, Stellenbosch, Western Cape, South Africa.

出版信息

Qual Health Res. 2014 Mar;24(3):420-30. doi: 10.1177/1049732314523841. Epub 2014 Feb 26.

Abstract

Individuals with disabilities continue to experience exclusion from mainstream contexts amid stereotypical constructions of disability as an inferior status. To address these inequities, we contend that the ramifications for both theory and praxis in disability research rests heavily on the way in which disability is theorized. In this article, we draw on the findings of a narrative inquiry as a context to frame an alternative theoretical model for disability research at both individual and social levels. We propose the efficacy of an integrated theoretical approach using the vehicle of narrative inquiry to present alternative stories by individuals with disabilities themselves. In alignment with a poststructuralist epistemology, we propose the addition of Lacanian psychoanalysis to address the construct of internalized oppression felt at an individual psychological level. We conclude that the epistemological and ontological lens through which research is conceptualized has the power either to subjugate or to emancipate individual experience.

摘要

在将残疾刻板地建构为一种低等状态的情况下,残疾人仍然被排除在主流环境之外。为了解决这些不平等问题,我们认为,残疾研究中理论与实践的影响在很大程度上取决于对残疾进行理论化的方式。在本文中,我们借鉴了一项叙事探究的结果,以此为背景构建一个适用于个体和社会层面的残疾研究的替代理论模型。我们提出一种综合理论方法的有效性,即利用叙事探究的手段来呈现残疾人自己的另类故事。与后结构主义认识论相一致,我们建议增加拉康精神分析来处理个体心理层面所感受到的内化压迫的建构。我们得出结论,研究得以概念化的认识论和本体论视角有能力使个体经验被征服或得到解放。

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