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残疾污名:克罗地亚的经验。

The stigma of disability: Croatian experiences.

机构信息

Faculty of Law, Department of Social Work, University of Zagreb, Zagreb, Croatia.

出版信息

Disabil Rehabil. 2012;34(9):725-32. doi: 10.3109/09638288.2011.616570. Epub 2011 Oct 12.

Abstract

PURPOSE

The aim of this paper is to get an insight into understanding the stigma of disability based on the experience and perception of people with disabilities and professionals who work with them.

METHODS

Qualitative research methods were used with two focus groups: one with people with disabilities (five participants) and other with professionals (seven participants). After data were collected, a qualitative content analysis was made.

RESULTS

The results indicated that participants perceived and experienced stigma of disability through intrinsic and extrinsic elements of stigmatization. The intrinsic elements refer to the feeling of being different as a result of negative attitudes, prejudices and stereotypes. The extrinsic elements derive from the relationship of the system towards people with disabilities: discrimination and labelling. Some of the major findings of this research are that the stigma of disability is shown through the inability of the people with disabilities to make their own decisions, the perception of the disability as the main feature of the person, the lack of criteria during education, perceiving disability as a precondition in choosing a partner and parental capability, parents' decision-making about their children's lives, overprotection and stigmatization in education and employment. Stigmatization leads to social exclusion and influences the quality of life.

CONCLUSION

The stigma of disability is manifested through the impossibility of realizing basic human rights, of living life independently and of taking equal part in a local community.

摘要

目的

本文旨在深入了解残疾污名化,基于残疾人和与他们一起工作的专业人士的经验和感知。

方法

采用了两种焦点小组的定性研究方法:一个是残疾人焦点小组(五名参与者),另一个是专业人员焦点小组(七名参与者)。收集数据后,进行了定性内容分析。

结果

结果表明,参与者通过污名化的内在和外在因素感知和体验残疾污名化。内在因素是指由于消极态度、偏见和刻板印象而产生的与众不同的感觉。外在因素源自系统与残疾人的关系:歧视和标签。这项研究的一些主要发现是,残疾污名化表现在残疾人无法做出自己的决定、残疾被视为个人的主要特征、教育过程中缺乏标准、将残疾视为选择伴侣和父母能力的先决条件、父母对孩子生活的决策、教育和就业中的过度保护和污名化。污名化导致社会排斥,影响生活质量。

结论

残疾污名化表现在无法实现基本人权、独立生活和在当地社区平等参与。

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