Department of Counseling and Family Sciences, Loma Linda University, Loma Linda, CA.
Fam Process. 2014 Jun;53(2):194-213. doi: 10.1111/famp.12066. Epub 2014 Mar 17.
Family systems play a crucial, albeit complex, role in pediatric chronic illness. Unfortunately, very few psychosocial interventions are available to help these stressed families navigate the developmental steps of chronic illness. A new intervention (MEND) addresses the needs of these families and applies to a broad range of chronic illnesses. This article presents this family systems intervention as well as includes preliminary program evaluation data on 22 families that graduated from the program. Results show consistently strong effects across an array of psychosocial measures. Conclusions from this preliminary study suggest that families entering MEND present with high levels of stress due to the child's chronic illness, but after MEND, the level of stress and other functioning measures are comparable to those seen in healthy families, suggesting that the program offers a significant benefit to families with pediatric chronic illness.
家庭系统在儿科慢性疾病中起着至关重要但复杂的作用。不幸的是，几乎没有什么心理社会干预措施可以帮助这些压力大的家庭应对慢性疾病的发展阶段。一种新的干预措施（MEND）满足了这些家庭的需求，并适用于广泛的慢性疾病。本文介绍了这种家庭系统干预措施，并包括了 22 个完成该项目的家庭的初步方案评估数据。结果显示，在一系列心理社会测量中，效果始终非常显著。这项初步研究的结论表明，由于孩子的慢性疾病，参加 MEND 的家庭面临着很高的压力水平，但在 MEND 之后，压力水平和其他功能测量与健康家庭相当，这表明该方案为患有儿科慢性疾病的家庭提供了显著的益处。
