Joo Bonglim, Lee Young-Mock, Kim Heung Dong, Eom Soyong
Department of Pediatrics, Severance Children's Hospital, Yonsei University College of MedicineSeoul, South Korea.
Department of Pediatrics, Gangnam Severance Hospital, Yonsei University College of MedicineSeoul, South Korea.
Front Neurosci. 2017 May 31;11:311. doi: 10.3389/fnins.2017.00311. eCollection 2017.
The purpose of this intervention was to develop a therapeutic psycho-educational program that improves quality of life in children and adolescents who are experiencing chronic neurological illness, including epilepsy, and their parents, and to analyze the intervention's feasibility and efficacy and participants' satisfaction. Participants were eight children ( = 8) and adolescents and their parents; participating children were experiencing chronic neurological illness with psychological comorbidity; children with intellectual impairment were excluded (IQ < 80). The program was carried out weekly for four sessions. In each of the 4 weeks, children's session content addressed self, emotion, coping skills, and finishing up, respectively; and parents' session content targeted family dynamic and emotional intervention, coping skills, childcare and education, and finishing up, respectively. Clinical psychologists administered psychological assessments (viz., Child Behavior Checklist, Pediatric Quality of Life Inventory, Parenting Stress Index, Beck Depression Inventory, Children's Depression Inventory, and Revised Children's Manifest Anxiety Scale) at pre- and post-intervention, and administered satisfaction surveys following the intervention. Participants' opinions about the program's necessity, contents, and process, and participants' overall program satisfaction were analyzed. Parents and children reported high levels of satisfaction with the program. Externalizing behavioral problems, anxiety/depression, and emotional functioning from quality of life showed improvement after the intervention. Although not statistically significant, total child stress trended downward from pre- to post-intervention. A four-session structured therapeutic psycho-educational program for children and adolescents with chronic neurological illness and their parents was successfully implemented, showing good compliance and high satisfaction and efficacy.
本次干预的目的是制定一项治疗性心理教育计划，以改善患有慢性神经疾病（包括癫痫）的儿童和青少年及其父母的生活质量，并分析该干预措施的可行性、有效性以及参与者的满意度。参与者为8名儿童和青少年及其父母；参与的儿童患有慢性神经疾病并伴有心理合并症；排除了智力障碍儿童（智商<80）。该计划每周进行一次，共四节课程。在四周中的每一周，儿童课程内容分别涉及自我、情绪、应对技巧和总结；父母课程内容分别针对家庭动态和情感干预、应对技巧、儿童保育和教育以及总结。临床心理学家在干预前后进行心理评估（即儿童行为检查表、儿童生活质量量表、育儿压力指数、贝克抑郁量表、儿童抑郁量表和修订版儿童显性焦虑量表），并在干预后进行满意度调查。分析了参与者对该计划的必要性、内容和过程的看法以及参与者对整个计划的满意度。父母和儿童对该计划的满意度很高。干预后，外化行为问题、焦虑/抑郁以及生活质量方面的情绪功能均有所改善。虽然无统计学意义，但从干预前到干预后，儿童的总体压力呈下降趋势。一项为患有慢性神经疾病的儿童和青少年及其父母设计的四节结构化治疗性心理教育计划得以成功实施，显示出良好的依从性、高满意度和有效性。
