Cipolletta Sabrina, Marchesin Valentina, Benini Franca
Department of General Psychology, University of Padua, Padua, Italy.
Department of General Psychology, University of Padua, Padua, Italy.
J Pediatr Nurs. 2015 Nov-Dec;30(6):e19-28. doi: 10.1016/j.pedn.2015.01.024. Epub 2015 Feb 11.
This study explored how family functioning may contribute to trace a child's illness trajectory. We conducted semi-structured interviews with 33 parents of children in care at a hospice in northern Italy. We also examined the medical records of the children, and interviewed the physician who cared for them. Data analysis was based on the grounded theory approach. Different illness progressions corresponded to the different ways with which families experienced the illness: possibility, focus on illness, denial, and anger. Clinical interventions should involve the whole family and take into account their role in the construction of illness trajectories.
本研究探讨了家庭功能如何有助于追踪儿童的疾病轨迹。我们对意大利北部一家临终关怀机构中33名受照料儿童的父母进行了半结构化访谈。我们还查阅了这些儿童的病历，并采访了照料他们的医生。数据分析基于扎根理论方法。不同的疾病进展对应着家庭体验疾病的不同方式：可能性、关注疾病、否认和愤怒。临床干预应涉及整个家庭，并考虑到他们在疾病轨迹构建中的作用。
