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癫痫中的耻辱感。

Stigma in epilepsy.

作者信息

Fiest Kirsten M, Birbeck Gretchen L, Jacoby Ann, Jette Nathalie

机构信息

Department of Clinical Neurosciences & Hotchkiss Brain Institute, University of Calgary, Foothills Medical Center, 1403 29 Street NW, Calgary, AB, T2N 2T9, Canada,

出版信息

Curr Neurol Neurosci Rep. 2014 May;14(5):444. doi: 10.1007/s11910-014-0444-x.

DOI:10.1007/s11910-014-0444-x
PMID:24652452
Abstract

Stigma remains a weight those with epilepsy have to carry and a defining feature of their identity. This article highlights recent studies published in the area of stigma, knowledge, attitudes, and practices regarding epilepsy. First, recent studies addressing the frequency of stigma and factors associated with stigma are discussed. Second, tools developed to ascertain stigma in epilepsy, or knowledge, attitudes, and practices, are examined. Lastly, we discuss interventions recently studied to reduce stigma in epilepsy.

摘要

耻辱感仍然是癫痫患者不得不背负的重担,也是他们身份的一个决定性特征。本文重点介绍了近期发表的关于癫痫耻辱感、知识、态度和行为方面的研究。首先,讨论了近期关于耻辱感发生频率及与耻辱感相关因素的研究。其次,研究了用于确定癫痫耻辱感或知识、态度和行为的工具。最后,我们讨论了近期研究的减少癫痫耻辱感的干预措施。

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Int Health. 2013 Dec;5(4):288-94. doi: 10.1093/inthealth/iht028. Epub 2013 Nov 8.
2
The impact of a short depression and anxiety screening tool in epilepsy care in primary health care settings in Zambia.在赞比亚初级卫生保健环境中的癫痫护理中,短期抑郁和焦虑筛查工具的影响。
Am J Trop Med Hyg. 2013 Nov;89(5):873-4. doi: 10.4269/ajtmh.13-0062. Epub 2013 Sep 23.
3
Epilepsy: What do health-care professionals in Riyadh know?
药剂师在加强癫痫护理中的作用:对社区和门诊干预措施的系统评价
J Pharm Policy Pract. 2025 Apr 10;18(1):2487046. doi: 10.1080/20523211.2025.2487046. eCollection 2025.
4
Impact of the COVID-19 Pandemic on Seizure Control in Pediatric Epilepsy: Risk Factors and Clinical Outcomes.2019年冠状病毒病大流行对小儿癫痫发作控制的影响:危险因素及临床结局
Healthcare (Basel). 2025 Jan 16;13(2):172. doi: 10.3390/healthcare13020172.
5
Determinants of the Quality of Life in Patients with Drug-Resistant Temporal Lobe Epilepsy: A Comparison of the Results before and after Surgery.耐药性颞叶癫痫患者生活质量的决定因素:手术前后结果比较
Brain Sci. 2024 Feb 29;14(3):241. doi: 10.3390/brainsci14030241.
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Association of Neighborhood Deprivation With Cognitive and Mood Outcomes in Adults With Pharmacoresistant Temporal Lobe Epilepsy.邻里贫困程度与药物难治性颞叶癫痫成人认知和情绪结果的关系。
Neurology. 2023 Jun 6;100(23):e2350-e2359. doi: 10.1212/WNL.0000000000207266. Epub 2023 Apr 19.
7
Design, Synthesis, , and Evaluation of Benzothiazoles Bearing a 1,3,4-Oxadiazole Moiety as New Antiepileptic Agents.含1,3,4-恶二唑部分的苯并噻唑类新型抗癫痫药物的设计、合成与评价
ACS Omega. 2023 Jan 5;8(2):2520-2530. doi: 10.1021/acsomega.2c06967. eCollection 2023 Jan 17.
8
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Front Pediatr. 2022 Oct 21;10:897333. doi: 10.3389/fped.2022.897333. eCollection 2022.
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