Department of Neurology, Oregon Health & Science University, Portland, OR 97239, USA.
Epilepsy Behav. 2013 Apr;27(1):247-50. doi: 10.1016/j.yebeh.2013.01.017. Epub 2013 Feb 27.
We evaluated videos on the social media website, YouTube, containing references to seizures and epilepsy. Of 100 videos, 28% contained an ictal event, and 25% featured a person with epilepsy recounting his or her personal experience. Videos most commonly fell into categories of Personal Experience/Anecdotal (44%) and Informative/Educational (38%). Fifty-one percent of videos were judged as accurate, and 9% were inaccurate; accuracy was not an applicable attribute in the remainder of the videos. Eighty-five percent of videos were sympathetic towards those with seizures or epilepsy, 9% were neutral, and only 6% were derogatory. Ninety-eight percent of videos were thought to be easily understood by a layperson. The user-generated content on YouTube appears to be more sympathetic and accurate compared to other forms of mass media. We are optimistic that with a shifting ratio towards sympathetic content about epilepsy, the amount of stigma towards epilepsy and seizures will continue to lessen.
我们评估了社交媒体网站 YouTube 上有关癫痫发作和癫痫的视频。在 100 个视频中，28%包含癫痫发作事件，25%的视频记录了癫痫患者讲述自己的个人经历。视频最常见的类别是个人经历/轶事（44%）和信息/教育（38%）。51%的视频被认为是准确的，9%的视频是不准确的；其余的视频则没有准确性这一属性。85%的视频对癫痫发作或癫痫患者表示同情，9%的视频持中立态度，只有 6%的视频表示轻蔑。98%的视频被认为易于理解。与其他形式的大众媒体相比，YouTube 上的用户生成内容似乎更具同情心和准确性。我们乐观地认为，随着对癫痫的同情内容比例的变化，癫痫和癫痫发作的耻辱感将继续减少。
