Brabcová Dana, Kohout Jiří, Weberová Veronika, Komárek Vladimír
Department of Psychology, Faculty of Education, University of West Bohemia, Plzen, Czech Republic.
Department of Physics, Faculty of Education, University of West Bohemia, Plzen, Czech Republic.
Epilepsy Behav. 2017 Apr;69:12-17. doi: 10.1016/j.yebeh.2017.01.019. Epub 2017 Feb 20.
Stigma has been related to epilepsy since ancient times. Despite the importance of this issue, only a few interventions focusing on the reduction of epilepsy-related stigma may be found in the literature. Thus, the aim of this study is to evaluate the effectiveness of two interventions focused on the reduction of epilepsy-related stigma in children aged 9-11years. The first group of children involved in the study (n=89) completed the 23-item Czech version of the SSE (Stigma Scale of Epilepsy) questionnaire and an 11-item multiple-choice knowledge test, then watched a video and completed the same questionnaire and test immediately after the intervention. The same procedure was used for the second group (n=93) where a story was read by an instructor. Both groups were retested 6months later using the same methods. Both interventions resulted in long-term decrease of epilepsy-related stigma - the average value on SSE decreased from 55.15 points at baseline testing to 43.28 points in the 6-month follow-up for the case of the video (p<0.001) and from 48.68 points to 36.97 points for the case of the story (p<0.001). Knowledge about epilepsy was also significantly improved with the average result in the knowledge test increasing from 6.58 to 9.09 points in case of the video (p<0.001) and from 6.88 to 8.99 points in case of the story (p<0.001). The results showed that both aforementioned interventions were significant and effective ways to reduce epilepsy-related stigma in the given age group.
自古以来，癫痫就与污名化相关。尽管这个问题很重要，但在文献中仅能找到少数关注减少癫痫相关污名化的干预措施。因此，本研究的目的是评估两种针对9至11岁儿童减少癫痫相关污名化的干预措施的有效性。参与研究的第一组儿童（n = 89）完成了23项捷克语版的癫痫污名量表（SSE）问卷和一项11项选择题的知识测试，然后观看一段视频，并在干预后立即完成相同的问卷和测试。第二组（n = 93）采用了相同的程序，由一名指导教师朗读一个故事。两组在6个月后都使用相同的方法进行重新测试。两种干预措施都导致了癫痫相关污名化的长期减少——对于观看视频的组，SSE的平均值从基线测试时的55.15分降至6个月随访时的43.28分（p < 0.001）；对于听故事的组，从48.68分降至36.97分（p < 0.001）。关于癫痫的知识也有显著提高，知识测试的平均成绩在观看视频的组中从6.58分提高到9.09分（p < 0.001），在听故事的组中从6.88分提高到8.99分（p < 0.001）。结果表明，上述两种干预措施都是在给定年龄组中减少癫痫相关污名化的重要且有效的方法。
