Engel-Yeger Batya, Zlotnik Sharon, Ravid Sarit, Shahar Eli
Department of Occupational Therapy, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel.
Department of Occupational Therapy, Rambam Medical Center, Rappaport School of Medicine, Haifa, Israel.
Epilepsy Behav. 2014 May;34:1-5. doi: 10.1016/j.yebeh.2014.02.021. Epub 2014 Mar 22.
The purpose of this study was to compare preferences for participation in out-of-school activities between children with childhood-onset primary generalized epilepsy and their healthy peers. Overall, participants were 56 children aged 6-11 years. The study group included 26 children with childhood-onset primary generalized epilepsy. The controls were 30 healthy children. Parents of all participants completed a demographic and health status questionnaire. All children completed the Preference Assessment of Children (PAC) that profiles the out-of-school activities the child wishes to participate in. Scores are calculated for five activity types, namely, recreational, active physical, social, skill-based, and self-improvement and for two domains of formal and informal activities. Children with generalized epilepsy showed a similar preference for participation in out-of-school activities as did their healthy peers. The study group showed a lower preference for participation in social activities but showed a higher preference for participation in self-improvement activities. In both groups, younger children (aged 6-8 years) showed a lower preference for participation in most PAC scales. Older children (aged 9-11 years) showed a higher preference for participation in social activities. Difference between genders was close to being statistically significant in the skill-based activities (F(1,21)=3.84, p=.06), where girls showed a higher preference compared with boys. Intervention policies need to be undertaken in order to encourage children with epilepsy to participate in activities together with their healthy peers, aiming to enhance the well-being of children with primary generalized epilepsy.
本研究的目的是比较儿童期起病的原发性全身性癫痫患儿与其健康同龄人参与校外活动的偏好。总体而言，参与者为56名6至11岁的儿童。研究组包括26名儿童期起病的原发性全身性癫痫患儿。对照组为30名健康儿童。所有参与者的家长都完成了一份人口统计学和健康状况问卷。所有儿童都完成了儿童偏好评估（PAC），该评估描绘了儿童希望参与的校外活动。计算了五种活动类型的得分，即娱乐、积极体育、社交、技能型和自我提升，以及正式和非正式活动的两个领域的得分。全身性癫痫患儿与其健康同龄人在参与校外活动方面表现出相似的偏好。研究组对参与社交活动的偏好较低，但对参与自我提升活动的偏好较高。在两组中，年幼的儿童（6至8岁）在大多数PAC量表上参与的偏好较低。年长的儿童（9至11岁）对参与社交活动的偏好较高。在技能型活动中，性别差异接近具有统计学意义（F(1,21)=3.84，p=.06），其中女孩比男孩表现出更高的偏好。需要制定干预政策，以鼓励癫痫患儿与健康同龄人一起参与活动，旨在提高原发性全身性癫痫患儿的幸福感。
